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      Neurofibromatosis type 1 (NF1): Resources

      Health A-Z

      A list of websites with in-depth information on neurofibromatosis type 1 (NF1) in children.

      Medical care for your child with neurofibromatosis type 1 (NF1)

      Health A-Z

      A child with neurofibromatosis type 1 must have consistent medical care. Parents can use this checklist to ensure their child receives all the care they need.

      Neurofibromatosis type 1 (NF1): Genetic counselling

      Health A-Z

      Genetic counselling helps people understand genetic or inherited disorders. It can help families learn about neurofibromatosis type 1 (NF1) and decide if testing is right for them.

      Genetics of neurofibromatosis type 1 (NF1)

      Health A-Z

      Neurofibromatosis Type 1 (NF1) occurs because of a mutation to the NF1 gene. About half of cases are spontaneous mutations, while the other half are inherited from a parent to a child.

      Neurofibromatosis type 1 (NF1): Genetic testing

      Health A-Z

      Neurofibromatosis type 1 (NF1) is a skin condition that causes growths on nerves. Find out what NF1 genetic testing is, what the test results mean and why to consider testing for it.

      Neurofibromatosis type 1 (NF1): How is it diagnosed?

      Health A-Z

      Learn about clinical and genetic testing, two ways that doctors diagnose Neurofibromatosis Type 1 (NF1). Each of these methods has advantages and limits.

      Neurofibromatosis type 1 (NF1): Treating health complications

      Health A-Z

      Learn how the complications of Neurofibromatosis Type 1 (NF1) are treated.

      Neurofibromatosis type 1 (NF1)

      Health A-Z

      Neurofibromatosis or NF1 causes growths to form on nerve tissues. Learn about both the common and uncommon skin and bone abnormalities of this condition.

      Plexiform neurofibroma in children with neurofibromatosis type 1

      Health A-Z

      Plexiform neurofibromas (PNs) are types of tumours that grow along nerves, most commonly occurring in children with neurofibromatosis type 1 (NF1). Learn about the symptoms, causes, treatment and long-term outcomes.

      Low-grade gliomas

      Health A-Z

      Read about the many different types of low-grade gliomas, including cerebellar, optic, brainstem, hemispheric, thalamic, and spinal cord.

      Acute lymphoblastic leukemia: An overview

      Health A-Z

      Acute lymphoblastic leukemia (ALL) is the most common childhood cancer. Learn about how this cancer develops and what factors may affect the development of the disease.

      Genetics

      Learning Hub

      Genetics can play an important role in your family's health. Learn more about genetics; genetic counselling, screening, and diagnosis; different genetic conditions; and how genetics relate to understanding and managing overall health.

      Brain disorders and mental health: Overview

      Health A-Z

      ​Brain disorders can be caused by medical conditions, illness or injury. Find out how they can affect a child's mental health and overall functioning.

      Type 2 diabetes

      Health A-Z

      Type 2 diabetes is less common in children and teens than in adults. Learn the signs of type 2 diabetes and how it is diagnosed.

      Café-au-lait macules (CALMs)

      Health A-Z

      Café-au-lait macules are flat marks on the skin. Find out how CALMs are diagnosed, how they affect the body and how they are treated.

      Haemophilus Influenzae Type B Vaccine

      Drug A-Z

      Your child needs to be given a vaccine called haemophilus influenzae type B vaccine. This information sheet explains what haemophilus influenzae type B vaccine does, how it is given, and what side effects or problems your child may have when they take this medicine.

      Acute myeloid leukemia: An overview

      Health A-Z

      Learn about how acute myeloid leukemia (AML) develops and what factors may affect the development of the disease.

      Management of type 2 diabetes

      Health A-Z

      In type 2 diabetes, the body does not produce enough insulin, or it cannot properly use what it produces. Learn how type 2 diabetes is managed.

      What is general anesthesia?

      Health A-Z

      This article will provide information to help prepare your child for their surgery, test or treatment under general anesthesia.

      Brain tumours: An overview

      Health A-Z

      An overview of the causes, genetics, symptoms, diagnosis, environmental risks and treatment of childhood brain tumours.

      Other types of cancer

      Aboutkidshealth Teens website link Health A-Z

      There are many types of cancer that can be diagnosed in children and teenagers. Learn about where to find information on different cancers and the types of questions you can ask your health-care team.

      Advocating for your child at school

      Health A-Z

      A child with a chronic condition eventually transitions back to school. Learn practical tips when advocating for your child at school.

      Thyroid biopsy/FNA: Caring for your child at home after the procedure

      Health A-Z

      Learn how to care for your child at home after a thyroid biopsy/fine needle aspiration (FNA).

      Treatment of other tumour types

      Health A-Z

      An in-depth look at treatment possibilities for other tumour types such as a pituitary adenoma, a schwannoma, a meningioma, and PNETs.

      Methicillin-resistant Staphylococcus aureus (MRSA)

      Health A-Z

      Methicillin-resistant Staphylococcus aureus (MRSA) is a type of bacteria that can cause infections ranging from mild to severe. Read about prevention and treatment of MRSA infections.

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