Children growing up with phenylketonuria (PKU) need to incorporate health care into their normal routines. Read about encouraging proper development.
Teenagers with phenylketonuria (PKU) face the unique challenge of balancing their health with their growing independence. Read about how you can support your teen with PKU.
Children with phenylketonuria (PKU) need to learn how to balance everyday life and health care. Learn ways to encourage your child to manage their PKU.
Find information to help you support your child with intestinal failure from birth to 11 years of age as they transition through developmental ages and stages.
Learn tips to help navigate the transitions you and your child will experience during their hospital stay for intestinal failure and when planning to return home from the hospital.
Learn about why children need limits, the challenges of limit setting and how to appropriately use consequences and time outs.
Find information to help support your teen (12 to 18 years of age) with intestinal failure transition through developmental ages and stages.
Recommendations for babies who have spent time in the NICU or CCCU to help improve neurodevelopment at eight months.
Read about the transition that must be made from paediatric to adult care.
Learn how often your child needs to be screened for diabetes complications and what you can expect from each test and screening.
Learn about the diagnostic criteria for autism spectrum disorder.
Find out how you can help your child cope with the challenges of a neurological condition and any related mental health issues.
Read about when you will need to transition to adult care, why this is necessary, and advice from other teens who have made the transition.
Learn about the signs and symptoms of hearing loss in babies and toddlers and what happens during the infant hearing screening process.
Learn about how hemophilia is treated, how to manage bleeds, transitioning to adult care and how to be more proactive about your own care.
Read about the causes, symptoms and treatments for generalized epilepsy syndromes.
DEE-SWAS is a rare epilepsy syndrome that can affect children aged two to 12. Learn about the symptoms, diagnosis and treatment of DEE-SWAS.
Detailed information on the effects that brain tumour treatment may have on a child's fertility and pubertal development.
Discover the role of folate in the body and how to get enough in your diet.
This page contains information to help parents cope with their increasingly independent teen.
Discover the sources and acceptable daily intake limits, if any, of sweeteners and caffeine.
Find information to help promote independence in your teenager while continuing to help them manage their cancer treatment.
Learn about the late effects after your child's autologous transplant.
Learn about late term effects after your child's blood and marrow transplant (BMT).
Learn about morphea of the face, a rare condition in which skin on the face becomes hard and tight due to excess collagen deposition. Learn about symptoms, treatments and long-term outcomes in children.
