A teacher's guide to congenital heart defects. Learn what you can do to help and what to expect if one of your students has a congenital heart defect.
Read about chronic illness and ways to cope. Congenital heart disease is a common example. While it can often be well managed, it never goes away.
Read about coping with a diagnosis. While the diagnosis may be upsetting, the good news is that a child's pain is no longer a mystery.
Learn about the types of heart conditions that arise in children. Congenital heart defects and heart rhythm problems are among the conditions discussed.
Books and websites with information about heart conditions in children.
Learn how congenital heart disease can affect a child’s experience in school.
Learn about open-heart, closed-heart, and minimally invasive heart surgery.
Learn about different types and possible signs and symptoms of heart conditions in children.
When you have a child with a complex health condition it is a good idea to write a letter to your child's school to give them the information they need.
Read about how the development of a child's intellect may be affected by a congenital heart condition.
In this section of the site, you will learn about the issues children born with congenital heart condition may face at different ages.
Read about Tetralogy of Fallot, a condition involving four congenital defects that occur when the heart does not develop normally.
Noonan syndrome is a genetic condition. Learn about the symptoms and diagnosis of Noonan syndrome and the heart conditions associated with the condition.
This page highlights how to ensure a diagnosis is completely understood. Asking questions to clarify the diagnosis is an acceptable and expected thing to do.
Learn about the impact of that a child's heart condition may have on their physical abilities.
How to effectively ensure that a child with a heart condition will have the best future possible. A healthy diet and avoiding risky behavior are discussed.
Learn about hypoplastic left heart syndrome (HLHS). This condition involves the left side of the heart being underdeveloped, and is extremely serious.
Learn about congenital heart disease in children. Congenital heart disease happens when parts of the heart do not form properly.
Learn about the role that genetics plays in many heart conditions that afflict children.
Blue spells occur when a child's lungs are not receiving enough blood to carry oxygen to the rest of the body. Find out what to do in case of a blue spell.
A heart transplant is surgery that replaces a heart that is not working properly with a healthy donor heart. Learn about heart transplants for children.
Learn about atrioventricular septal defects (AVSD) in children. This condition involves the lung overfilling with blood.
Read about preparing a teenager with congenital heart disease for high school. Guidance counselors and managing work, time and treatment are discussed.
Find information and answers to common questions about COVID-19, for parents and caregivers of children with congenital heart disease.
Information about different heart conditions, including congenital heart conditions such as atrial septal defect and patent ductus arteriosus. Also discussed are arrhythmias, blue spells and congestive heart failure.
