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Organization tips for caregivers of a child with complex medical needs

Health A-Z

Taking care of a medically complex child can be a daunting task. Staying organized may help to make your life easier.

Tuberous sclerosis complex (TSC)

Health A-Z

Tuberous sclerosis complex (TSC) is a genetic condition. Learn what causes it, and how it is diagnosed and treated.

Coping with your child's illness as a parent

Health A-Z

Coping with your child’s illness as a parent means taking care of yourself. Learn practical stress relief approaches for parents.

COVID-19: Information for parents of immunocompromised children and children with chronic medical conditions

Health A-Z

Children who are immunocompromised and children with chronic medical conditions may be at higher risk of serious illness with COVID-19.

Types of community health services

Health A-Z

There are many different types of community health services that are available to help you and your child.

Coping with epilepsy as a family

Health A-Z

Siblings may receive less attention at times because the needs of a child with epilepsy take over. Helping siblings cope is an important aspect of family life as well.

Blood and marrow transplant (BMT) resources and links

Health A-Z

Parents can find helpful resources on blood and marrow transplants.

Caring for yourself when your child is ill

Health A-Z

Read about coping with the challenges of taking care of a child who is ill. These challenges can have a huge impact on the relationship between parents.

Coping with chronic illness like congenital heart defects

Health A-Z

Read about chronic illness and ways to cope. Congenital heart disease is a common example. While it can often be well managed, it never goes away.

What is palliative care?

Health A-Z

Palliative care includes reducing the physical, psychological, social and spiritual suffering that is associated with serious illness. Learn about the role palliative care providers can have in your child’s care.

Caring for yourself when you have a child with a brain tumour

Health A-Z

Find out how caring for a child with a serious illness can impact the relationship between parents and other family members, and how to support yourself when caring for others.

Pedestrian safety for children

Health A-Z

Find out how to create safe walking routines for your child.

Multisystem inflammatory syndrome in children (MIS-C)

Health A-Z

Learn about multisystem inflammatory syndrome in children (MIS-C), a rare syndrome linked to a SARS-CoV-2 infection.

Behaviour changes and congenital heart disease

Health A-Z

If your child has a heart condition, you may notice changes in their behaviour or that they display behavioural problems from time to time.

Vein of Galen malformation

Health A-Z

A vein of Galen malformation can affect the brain, heart and other organs in the body. Learn what a vein of Galen malformation is, the signs and symptoms, how it is diagnosed, and the treatment options available.

Talking with your child's school

Health A-Z

Having a child with a complex condition means sharing information at school. Learn how to prepare in advance when talking to your child's school.

Epilepsy: An overview

Health A-Z

An overview of seizures and epilepsy, with information about treatment options.

Down syndrome

Health A-Z

Down syndrome is a genetic condition present at birth. Learn about the symptoms, complications and outlook for children with Down syndrome.

Child life specialists for blood and marrow transplant/cellular therapy

Health A-Z

Learn how child life specialists can help during your child's blood and marrow transplant/cellular therapy.

Epilepsy and behaviour

Health A-Z

Most parents of children living with epilepsy are concerned about aspects of their child’s behaviour. Varying behaviors can be expected from a child with epilepsy. Learn about causes of behavioural changes and how to manage them.

Caring for yourself when a child has epilepsy

Health A-Z

Adjusting to a child’s epilepsy diagnosis can be challenging and parents often put their own needs last. However, it is important for parents to take care of themselves too. Learn about self-care suggestions for parents.

Brain tumour resources

Health A-Z

This page provides a list of resources that may be helpful to parents of children with brain tumours. These include books, web resources and support groups.

Child and speech-language pathologist sitting at a small table looking at a picture together

The role of a speech-language pathologist

A speech-language pathologist supports various aspects of communication, as well as safe swallowing and feeding skills. Learn more about the role of speech-language pathologists.

Communicating with others about your child's needs

Health A-Z

When you are the parent of a child with a complex condition you will need to talk with many different people. Learn some strategies to help with this communication.

High grade gliomas

Health A-Z

High-grade gliomas are a type of brain tumour that can develop in the central nervous system. Learn about the symptoms, causes, diagnosis and treatment.