Palliative care includes reducing the physical, psychological, social and spiritual suffering that is associated with serious illness. Learn about the role palliative care providers can have in your child’s care.
The CARD system provides groups of strategies that can be used before and during vaccination to make the experience a more positive one for your patients.
Your health-care team is there to support you and answer any questions you might have. Find out how much you should share with them, how to talk to your team on your own and what to do if they can't answer your questions.
A respiratory therapist (RT) is a health professional specially trained to help patients with breathing disorders. An RT will help care for your child after heart surgery.
An overview of the many different health-care professionals that are involved in the care of a child with a brain tumour.
Learn about congenital heart disease in children. Congenital heart disease happens when parts of the heart do not form properly.
Find tips to help you find the positives in your life instead of focusing on the negatives, which can increase your positive emotions over time and reduce your pain.
Read about various nutrition and feeding consultants, such as dietitians and lactation consultants, who work to ensure that babies and children with heart conditions receive proper nutrition.
Books and websites with information about heart conditions in children.
Learn about the supports available to families coping with pregnancy and infant loss, including perinatal palliative care.
Read about when you will need to transition to adult care, why this is necessary, and advice from other teens who have made the transition.
In this section of the site, you will learn about the issues children born with congenital heart condition may face at different ages.
Learn about avoidant/restrictive food intake disorder (ARFID), including signs and symptoms, what to do if you think you have it and how it's treated.
It is important to pay attention to infant mental health, especially for babies with congenital heart disease (CHD). Learn how to read your baby's cues and how you can help your baby achieve their developmental milestones.
Learn how to help your child and your family cope with eczema (atopic dermatitis).
Learn what self-monitoring means, why it is important during treatment and how you can practice it.
Recommendations for navigating your way through the health-care system as a teenager and gaining independence in managing your own health care.
Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving your consent to participate.
Teens living with hemophilia can learn what to expect when making the inevitable transition from paediatric care to adult care.
Learn about organ and tissue donation by children with a heart condition.
How to effectively ensure that a child with a heart condition will have the best future possible. A healthy diet and avoiding risky behavior are discussed.
