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What is palliative care?

Palliative care includes reducing the physical, psychological, social and spiritual suffering that is associated with serious illness. Learn about the role palliative care providers can have in your child’s care.

Transitioning to adult health care

Talking with your health-care team

Your health-care team is there to support you and answer any questions you might have. Find out how much you should share with them, how to talk to your team on your own and what to do if they can't answer your questions.

The brain tumour health-care team

An overview of the many different health-care professionals that are involved in the care of a child with a brain tumour.

The CARD system for health-care providers

The CARD system provides groups of strategies that can be used before and during vaccination to make the experience a more positive one for your patients.

How respiratory therapists help children with congenital heart conditions

A respiratory therapist (RT) is a health professional specially trained to help patients with breathing disorders. An RT will help care for your child after heart surgery.

Avoidant/restrictive food intake disorder (ARFID)

Learn about avoidant/restrictive food intake disorder (ARFID), including signs and symptoms, what to do if you think you have it and how it's treated.

Congenital heart disease: Looking ahead

In this section of the site, you will learn about the issues children born with congenital heart condition may face at different ages.

Mental health in infants with congenital heart conditions

It is important to pay attention to infant mental health, especially for babies with congenital heart disease (CHD). Learn how to read your baby's cues and how you can help your baby achieve their developmental milestones.

Diagnosis of congenital heart disease

Learn about congenital heart disease in children. Congenital heart disease happens when parts of the heart do not form properly.

Teens, parents, surgeons... who's thinking what?

There are a number of concerns that arise around scoliosis. Find out how these different concerns rank among the patients, their families and their surgeons.

Talking to your doctor

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving your consent to participate.

Heart transplants

A heart transplant is surgery that replaces a heart that is not working properly with a healthy donor heart. Learn about heart transplants for children.

Nutrition and feeding consultants for patients with congenital heart disease

Read about various nutrition and feeding consultants, such as dietitians and lactation consultants, who work to ensure that babies and children with heart conditions receive proper nutrition.

Consent, capacity and medical decision-making for children

Learn about the roles of children, parents, caregivers and health-care providers in the shared medical decision-making process. As children mature, they develop the capacity to participate in more decisions about their own health.

Heart conditions resources

Books and websites with information about heart conditions in children.

Congenital heart defects: Information for teachers

A teacher's guide to congenital heart defects. Learn what you can do to help and what to expect if one of your students has a congenital heart defect.

Transitioning through health care as a teenager: Timeline

Recommendations for navigating your way through the health-care system as a teenager and gaining independence in managing your own health care.

Behaviour changes and congenital heart disease

If your child has a heart condition, you may notice changes in their behaviour or that they display behavioural problems from time to time.

Growth and stature of children with heart disease

Learn about how growth and stature are affected by congenital heart disease.

Future health for children with congenital heart defects

How to effectively ensure that a child with a heart condition will have the best future possible. A healthy diet and avoiding risky behavior are discussed.

Sickle cell disease: Finding the positives

Find tips to help you find the positives in your life instead of focusing on the negatives, which can increase your positive emotions over time and reduce your pain.

Self-monitoring: Recognizing symptoms and side effects

Learn what self-monitoring means, why it is important during treatment and how you can practice it.

Transitioning to adult health care

Read about when you will need to transition to adult care, why this is necessary, and advice from other teens who have made the transition.