Palliative care includes reducing the physical, psychological, social and spiritual suffering that is associated with serious illness. Learn about the role palliative care providers can have in your child’s care.
An overview of the many different health-care professionals that are involved in the care of a child with a brain tumour.
A respiratory therapist (RT) is a health professional specially trained to help patients with breathing disorders. An RT will help care for your child after heart surgery.
Learn about avoidant/restrictive food intake disorder (ARFID), including signs and symptoms, what to do if you think you have it and how it's treated.
The CARD system provides groups of strategies that can be used before and during vaccination to make the experience a more positive one for your patients.
It is important to pay attention to infant mental health, especially for babies with congenital heart disease (CHD). Learn how to read your baby's cues and how you can help your baby achieve their developmental milestones.
Your health-care team is there to support you and answer any questions you might have. Find out how much you should share with them, how to talk to your team on your own and what to do if they can't answer your questions.
Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving your consent to participate.
In this section of the site, you will learn about the issues children born with congenital heart condition may face at different ages.
Read about various nutrition and feeding consultants, such as dietitians and lactation consultants, who work to ensure that babies and children with heart conditions receive proper nutrition.
There are a number of concerns that arise around scoliosis. Find out how these different concerns rank among the patients, their families and their surgeons.
Learn about congenital heart disease in children. Congenital heart disease happens when parts of the heart do not form properly.
Books and websites with information about heart conditions in children.
Find tips to help you find the positives in your life instead of focusing on the negatives, which can increase your positive emotions over time and reduce your pain.
If your child has a heart condition, you may notice changes in their behaviour or that they display behavioural problems from time to time.
Learn about how growth and stature are affected by congenital heart disease.
Read about when you will need to transition to adult care, why this is necessary, and advice from other teens who have made the transition.
A heart transplant is surgery that replaces a heart that is not working properly with a healthy donor heart. Learn about heart transplants for children.
Learn about the supports available to families coping with pregnancy and infant loss, including perinatal palliative care.
Learn how to help your child and your family cope with eczema (atopic dermatitis).
When you are the parent of a child with a complex condition you will need to talk with many different people. Learn some strategies to help with this communication.
Read about tips and tricks for finding a primary health-care provider on your own.
