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Sickle cell disease: Useful research terms and resources

You and your child may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Sickle cell disease: Useful research terms and resources

Health A-Z

You may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Facioscapulohumeral muscular dystrophy (FSHD)

Learn about facioscapulohumeral muscular dystrophy (FSHD) disease, a genetic condition that leads to progressive muscle weakness and loss of muscle bulk mostly affecting the facial, shoulder and upper arm muscles.

Brain tumours

Learning Hub

Learn about the different types of brain tumours, how they are diagnosed and treated, and the various supports available to families.