Children with epilepsy, particularly those with visible and more frequent seizures, are at risk for social isolation. A number of factors contribute to social isolation:
- Children may feel different from others.
- They may lack confidence to pursue social and recreational activities because of fear of their seizures and the stigma associated with epilepsy.
- Non-acceptance, teasing, and bullying by peers further increases the sense of isolation.
- Concerns about safety may restrict or limit the child’s social participation -- for example, participation in school sports, play at recess, special school trips, or gym class.
The problem of bullying and teasing is emerging as a major problem in studies of children with epilepsy. Rates of bullying and teasing reported by these children and adolescents can be upwards of 85%. The concern with repeated exposure to bullying and teasing, and even to social isolation and exclusion, is that over time these experiences reinforce the child’s negative self-esteem and his view of himself as being different from others.
Encouraging your child’s self-confidence and social integration
Respect his uniqueness and build on his strengths. Help him to feel competent by learning through both his successes and mistakes. Balance your need for protection with his need to take risks.
- Encourage your child’s independence at home, at school, and in the community. Where necessary, advocate for your child so that others understand epilepsy and he is included in activities with his peers.
- Talk to your child about his epilepsy in an age-appropriate way. Highlight that epilepsy is only one aspect of who he is as a person, as opposed to a condition that defines him. When your child must cope with difficulties related to his epilepsy, emphasize the strength and bravery that it takes for him to get through these difficult times.
- Create an environment where he can feel responsible, capable, and independent. Help him take on responsibilities, with adequate support systems in place to help him succeed.
- Encourage social contacts. Ensure a sense of belonging by creating opportunities for him to play with other children.
- If he is being bullied or isolated at school, speak to his teachers or school administrators for help.
- If you feel there are issues you cannot help your child with, discuss them with the epilepsy care team and get professional help from a social worker or psychologist where necessary.