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Sickle cell disease: Useful research terms and resources

You may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Sickle cell disease: Useful research terms and resources

You and your child may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Cancer research and your teenager

Learn about ongoing cancer research and your teenager's role in research and clinical trials.

Research and clinical trials: An overview

Learn about the different kinds of health research and how research leads to better health care.

Cancer research

Find out how cancer research works, what clinical trials are and what role you play in research.

Clinical trials and your child

Here are some things to think about if you have been invited to enroll your child in a clinical trial.

About blood and marrow transplant research

Learn about research and clinical trials related to your child's blood and marrow transplant.

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving your consent to participate.

Treating leukemia

This section describes the treatment options for both acute lymphoblastic leukemia (ALL) and acute myeloid leukemia (AML).

Epilepsy: An overview

An overview of seizures and epilepsy, with information about treatment options.

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving consent for your child to participate.

Epilepsy resources and support

A detailed list of epilepsy organizations, research and books. A wide range of topics is covered, including guides for families and the ketogenic diet.

Cancer programs and resources

Find helpful resources and programs to support you, your child and your family during your child's cancer treatment.

Understanding your child's epilepsy diagnosis

Find out how epilepsy is diagnosed and what questions to ask to make sure you understand the diagnosis.

Types of epilepsy

Read about the types of epilepsy and the suggested treatments.

The future of juvenile idiopathic arthritis (JIA)

Cancer resources

Discover multimedia resources that can offer you information and support throughout cancer treatment and beyond.

Common anti-epileptic drugs

Read about common anti-epileptic drugs. Each AED has a generic name and one or more brand names. The generic name is the chemical name for the drug.

Consent, capacity and medical decision-making for children

Learn about the roles of children, parents, caregivers and health-care providers in the shared medical decision-making process. As children mature, they develop the capacity to participate in more decisions about their own health.

Focal epilepsies

Read about the causes, symptoms and treatments for focal epilepsies in children.

What does the future hold for a child with epilepsy

The prognosis of an illness is a forecast of how it will develop and the outcome after treatment. Read about the factors that affect the prognosis of a child with epilepsy.

Coping with epilepsy as a family

Siblings may receive less attention at times because the needs of a child with epilepsy take over. Helping siblings cope is an important aspect of family life as well.

Epilepsy and learning

Learn how to support a child with epilepsy who experiences some of the cognitive consequences associated with the condition.

Epilepsy: Sex and reproduction

Most people with epilepsy can have full social, sexual and family lives. Read about issues surrounding sex and reproduction for those with epilepsy.