Read about coping with a diagnosis. While the diagnosis may be upsetting, the good news is that a child's pain is no longer a mystery.
Read about chronic illness and ways to cope. Congenital heart disease is a common example. While it can often be well managed, it never goes away.
Learn about the types of heart conditions that arise in children. Congenital heart defects and heart rhythm problems are among the conditions discussed.
A teacher's guide to congenital heart defects. Learn what you can do to help and what to expect if one of your students has a congenital heart defect.
Learn about open-heart, closed-heart, and minimally invasive heart surgery.
Books and websites with information about heart conditions in children.
Learn about different types and possible signs and symptoms of heart conditions in children.
Read about how the development of a child's intellect may be affected by a congenital heart condition.
Read about Tetralogy of Fallot, a condition involving four congenital defects that occur when the heart does not develop normally.
In this section of the site, you will learn about the issues children born with congenital heart condition may face at different ages.
Noonan syndrome is a genetic condition. Learn about the symptoms and diagnosis of Noonan syndrome and the heart conditions associated with the condition.
This page highlights how to ensure a diagnosis is completely understood. Asking questions to clarify the diagnosis is an acceptable and expected thing to do.
Learn about congenital heart disease in children. Congenital heart disease happens when parts of the heart do not form properly.
Learn about hypoplastic left heart syndrome (HLHS). This condition involves the left side of the heart being underdeveloped, and is extremely serious.
Learn about the role that genetics plays in many heart conditions that afflict children.
Blue spells occur when a child's lungs are not receiving enough blood to carry oxygen to the rest of the body. Find out what to do in case of a blue spell.
How to effectively ensure that a child with a heart condition will have the best future possible. A healthy diet and avoiding risky behavior are discussed.
Learn about atrioventricular septal defects (AVSD) in children. This condition involves the lung overfilling with blood.
A heart transplant is surgery that replaces a heart that is not working properly with a healthy donor heart. Learn about heart transplants for children.
Learn about coarctation of the aorta. This condition involves a narrowing of the major artery leading from the heart to the body, affecting blood pressure.
Learn about ventricular septal defects (VSD), an opening in the wall between the ventricles of the heart.
Learn about the types of atrial septal defects (ASD), how they are diagnosed, treated, and what the long-term outcomes for children with ASD.
Learn how congenital heart disease can affect a child’s experience in school.
Find information and answers to common questions about COVID-19, for parents and caregivers of children with congenital heart disease.
The risk of complications involved with surgical procedures to correct congenital heart disease is very low.
