CNS vasculitis: Lifestyle changesCCNS vasculitis: Lifestyle changesCNS vasculitis: Lifestyle changesEnglishHaematologyChild (0-12 years);Teen (13-18 years)BrainArteries;Veins;Capillaries;BrainNon-drug treatmentCaregivers Adult (19+)NA2009-11-06T05:00:00ZSusanne Benseler, MD;Holly Convery, RNEC, BScN5.0000000000000077.0000000000000690.000000000000Flat ContentHealth A-Z<p>A child who has CNS vasculitis will need to deal with several lifestyle changes. Find out how you can help your child cope through the treatment period. </p><p>CNS vasculitis and its treatment can affect your child's home and school life. Treatment for CNS vasculitis takes about two years. During this time, your child will be taking several kinds of medicine. They will also need to visit the hospital often. All these things can affect their day-to-day life. </p> <p>This page discusses the changes in your child's life and suggests ways to cope. These suggestions come from children, teens and parents who have experienced CNS vasculitis.</p><h2>Key points</h2> <ul> <li>CNS vasculitis is treated with medicine to suppress the immune system. Treatment takes about two years. </li> <li>The medicines your child takes for CNS vasculitis will make them hungrier and more tired than usual. They will gain weight. They may have trouble concentrating at school. </li> <li>If you or your child need help dealing with the effects of treatment, ask a member of the treatment team for help.</li> </ul>
Vasculite du système nerveux central : Changements de style de vieVVasculite du système nerveux central : Changements de style de vieCNS vasculitis: Lifestyle changesFrenchHaematologyChild (0-12 years);Teen (13-18 years)BrainArteries;Veins;Capillaries;BrainNon-drug treatmentCaregivers Adult (19+)NA2009-11-06T05:00:00ZSusanne Benseler, MD;Holly Convery, RNEC, BScN5.0000000000000077.0000000000000690.000000000000Flat ContentHealth A-Z<p>Apprenez comment vous pouvez l'aider à composer pendant la période de traitement. </p><p>La vasculite du système nerveux central (SNC) et les traitements qui y sont associés peuvent avoir un effet sur la vie de votre enfant à la maison et à l'école. Le traitement de la vasculite du SNC prend environ deux ans. Pendant ce temps, votre enfant devra prendre différents médicaments. Il aura aussi des visites fréquentes à l'hôpital. Tout cela affectera sa vie quotidienne.</p> <p>Le présent texte aborde les changements qui se produiront dans la vie de votre enfant et suggère des façons d'y faire face. Ces suggestions proviennent d'enfants, d'adolescents et de parents qui ont dû composer avec une vasculite du SNC.</p><h2>À ret​enir</h2> <ul> <li>La vasculite du SNC est traitée avec des médicaments pour supprimer le système immunitaire. Le traitement prend environ deux ans.</li> <li>Les médicaments que votre enfant prendra pour traiter la vasculite du SNC lui donneront plus faim que d'habitude et il se sentira plus fatigué que d'ordinaire. Il prendra du poids et pourra avoir du mal à se concentrer à l'école.</li> <li>Si vous ou votre enfant avez besoin d'aide pour composer avec les effets du traitement, demandez de l'aide à un membre de l'équipe soignante.</li> </ul>

 

 

CNS vasculitis: Lifestyle changes1127.00000000000CNS vasculitis: Lifestyle changesCNS vasculitis: Lifestyle changesCEnglishHaematologyChild (0-12 years);Teen (13-18 years)BrainArteries;Veins;Capillaries;BrainNon-drug treatmentCaregivers Adult (19+)NA2009-11-06T05:00:00ZSusanne Benseler, MD;Holly Convery, RNEC, BScN5.0000000000000077.0000000000000690.000000000000Flat ContentHealth A-Z<p>A child who has CNS vasculitis will need to deal with several lifestyle changes. Find out how you can help your child cope through the treatment period. </p><p>CNS vasculitis and its treatment can affect your child's home and school life. Treatment for CNS vasculitis takes about two years. During this time, your child will be taking several kinds of medicine. They will also need to visit the hospital often. All these things can affect their day-to-day life. </p> <p>This page discusses the changes in your child's life and suggests ways to cope. These suggestions come from children, teens and parents who have experienced CNS vasculitis.</p><h2>Key points</h2> <ul> <li>CNS vasculitis is treated with medicine to suppress the immune system. Treatment takes about two years. </li> <li>The medicines your child takes for CNS vasculitis will make them hungrier and more tired than usual. They will gain weight. They may have trouble concentrating at school. </li> <li>If you or your child need help dealing with the effects of treatment, ask a member of the treatment team for help.</li> </ul><h2>Your child may be hungrier than usual</h2> <p>Your child does not need to change what they normally eats. But they will be taking high doses of a medicine called prednisone. This medicine has several side effects: </p> <ul> <li>It can make your child hungrier than usual. </li> <li>It can cause water retention. </li> <li>It will make your child gain weight. </li> </ul> <p>While your child is taking prednisone, you will need to plan their meals and snacks carefully. Here are some tips to help control weight gain and water retention: </p> <ul> <li>Offer healthy portion sizes. </li> <li>Offer your child foods that are low in fat and salt. </li> </ul> <p>If you need help working out a food plan, a dietitian can help. A dietitian is a person who is trained in food and nutrition.</p> <h2>Your child may have to miss some school</h2> <p>As long as your child feels well enough, they can go to school while they are being treated for CNS vasculitis.</p> <p>Speak to your child's school as soon as possible to explain your child's illness. If you wish, ask your child's doctor to send a letter to the school. The doctor can help explain how CNS vasculitis may affect your child's school work.</p> <h3>Your child may find it hard to concentrate on school work</h3> <p>Some children may find it harder to concentrate on school work. They will need lots of patience and extra help. Some children may need to stop going to school until they feel better.</p> <p>On the other hand, most parents and children say that school work gets better after starting treatment for CNS vasculitis.</p> <p>If you or your child are concerned about school issues, speak to your doctor or the hospital social worker.</p> <h2>Your child may not be able to play sports</h2> <p>During treatment, your child can be as active as they feel able to. But many children cannot join in the activities and sports that they used to. They feel too tired or too weak. Your child will be able to go back to these sports when they feel well enough. </p> <h2>Your child's appearance will probably change while they are taking prednisone</h2> <p>Your child's appearance will change while they are taking high doses of prednisone. These changes will not last forever. They will go away when they stop taking prednisone. The changes may include: </p> <ul> <li>Your child will gain weight in the cheeks and belly. </li> <li>Your child may get acne. </li> <li>Your child may grow hair on the face. </li> </ul> <p>For children, especially teenagers, these changes may be hard to deal with. Encourage your child to talk about how they feel with the health care team. They can get support if they need it. </p> <p>Remember that the weight gain is temporary. As soon as your child stops taking prednisone, they will start losing the weight they have gained. </p> <p>If your child is being teased about the sudden weight gain, remind your child that they will get through this difficult time. Encourage them to speak with their teacher for help dealing with the teasing. If the situation does not improve, ask to speak with the hospital social worker. </p> <h2>Your child will need to visit the hospital regularly</h2> <p>Your child will need to visit the hospital between one and three times a month during the first year of treatment. When they are stable on maintenance therapy, they will need to visit the hospital every two to four months. Your child will be at the hospital for up to four hours each time. They will probably not need to stay overnight in the hospital. </p><img alt="" src="https://assets.aboutkidshealth.ca/AKHAssets/CNS_vasculitis_lifestyle_changes.jpg" style="BORDER:0px solid;" />https://assets.aboutkidshealth.ca/AKHAssets/CNS_vasculitis_lifestyle_changes.jpgCNS vasculitis: Lifestyle changes

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