Coping with the pain of brain tumoursCCoping with the pain of brain tumoursCoping with the pain of brain tumoursEnglishNeurologyChild (0-12 years);Teen (13-18 years)BrainNervous systemNAAdult (19+)NA2009-08-14T04:00:00ZDavid Brownstone, MSW, RSWDeborah S. Berlin-Romalis, BSW, MSW, RSWHeather Young, MSW, RSW6.0000000000000069.00000000000001701.00000000000Flat ContentHealth A-Z<p>In-depth information, advice on how to cope, and issues concerning the pain that may result from your child's brain tumour treatment.</p><p>Many parents worry that their child will suffer a lot of pain from the tumour, the diagnostic techniques, or treatment. Fortunately, we have learned many ways to control pain in children with brain tumours. It’s important for you, your child, and the treatment team to work together to reduce or eliminate as much of the pain as possible. </p> <p>You will be able to help your child better if you are both prepared for potentially painful experiences, and you soothe your child when they are in pain. You know best how to comfort your child, but may wish to learn other techniques that have helped others. You can also assist the treatment team in putting together a plan to minimize the pain or discomfort. As part of this plan, the team may recommend medicines to prevent or control pain. </p><h2>Key points</h2> <ul><li>Children may experience pain from procedures, from their treatment, or from the tumour itself.</li> <li>Children show pain in different ways depending on their age.</li> <li>Depending on your child's age, there are several ways you can prepare them for procedures and help them cope with their pain.</li></ul>
Composer avec la douleur des tumeurs cérébralesCComposer avec la douleur des tumeurs cérébralesCoping with the pain of brain tumoursFrenchNeurologyChild (0-12 years);Teen (13-18 years)BrainNervous systemNAAdult (19+)NA2009-08-14T04:00:00ZDavid Brownstone, MSW, RSW Deborah S. Berlin-Romalis, BSW, MSW, RSW Heather Young, MSW, RSW6.0000000000000069.00000000000001701.00000000000Flat ContentHealth A-Z<p>Information détaillée, conseils et enjeux en ce qui concerne le fait de composer avec la douleur qui pourrait découler du traitement de la tumeur cérébrale de votre enfant.</p><p>Bon nombre de parents s'inquiètent du fait que leur enfant souffre beaucoup en raison de la tumeur ou du traitement. Heureusement, nous avons découvert de nombreuses façons d'atténuer la douleur chez les enfants atteints de tumeurs cérébrales. Il est important pour vous, votre enfant et l'équipe de traitement de travailler ensemble afin de réduire ou d'éliminer le plus de douleur possible. </p> <p>Vous serez plus à même d'aider votre enfant si vous êtes tous deux préparés à vivre des expériences qui pourraient être douloureuses, et si vous consolez votre enfant quand il ressent de la douleur. Vous êtes la personne la mieux placée pour savoir comment réconforter votre enfant, mais vous souhaiterez peut-être apprendre des techniques dont d'autres personnes se sont servies. Vous pouvez aussi aider l'équipe de traitement à établir un plan afin de réduire au minimum la douleur et l'inconfort. Dans le cadre de ce plan, l'équipe pourrait recommander des médicaments afin de prévenir ou d'atténuer la douleur.</p><h2>À retenir</h2> <ul><li>Les enfants peuvent ressentir de la douleur à la suite des interventions, de leur traitement ou de la tumeur elle-même.</li> <li>Les enfants laissent percevoir la douleur de différentes façons selon leur âge.</li> <li>Selon l’âge de votre enfant, vous pouvez employer différentes façons de le préparer aux interventions et de l’aider à composer avec la douleur.</li></ul>

 

 

Coping with the pain of brain tumours1343.00000000000Coping with the pain of brain tumoursCoping with the pain of brain tumoursCEnglishNeurologyChild (0-12 years);Teen (13-18 years)BrainNervous systemNAAdult (19+)NA2009-08-14T04:00:00ZDavid Brownstone, MSW, RSWDeborah S. Berlin-Romalis, BSW, MSW, RSWHeather Young, MSW, RSW6.0000000000000069.00000000000001701.00000000000Flat ContentHealth A-Z<p>In-depth information, advice on how to cope, and issues concerning the pain that may result from your child's brain tumour treatment.</p><p>Many parents worry that their child will suffer a lot of pain from the tumour, the diagnostic techniques, or treatment. Fortunately, we have learned many ways to control pain in children with brain tumours. It’s important for you, your child, and the treatment team to work together to reduce or eliminate as much of the pain as possible. </p> <p>You will be able to help your child better if you are both prepared for potentially painful experiences, and you soothe your child when they are in pain. You know best how to comfort your child, but may wish to learn other techniques that have helped others. You can also assist the treatment team in putting together a plan to minimize the pain or discomfort. As part of this plan, the team may recommend medicines to prevent or control pain. </p><h2>Key points</h2> <ul><li>Children may experience pain from procedures, from their treatment, or from the tumour itself.</li> <li>Children show pain in different ways depending on their age.</li> <li>Depending on your child's age, there are several ways you can prepare them for procedures and help them cope with their pain.</li></ul><h2>When will your child be in pain?</h2><p>In studies, children say the most difficult thing about treatment is dealing with painful procedures. Many procedures involve needles, such as finger pricks, blood tests, lumbar punctures (spinal taps), bone marrow aspirations, and accessing central lines. This type of pain may be sharp but usually goes away after the procedure. </p><p>Children may also experience discomfort or pain as a side effect of treatment. After surgery your child may have pain from the operation. Some chemotherapy drugs can cause side effects such as nerve pain, or a sore mouth or throat. Radiation can also cause pain, such as headaches. </p><p>The tumour itself can cause pain. You may have already seen painful symptoms in your child. This type of pain can last longer and can come and go. </p><h2>How can you tell if your child is in pain?</h2><p>Children show pain in different ways depending on their age. You can probably sense when your child is in pain. Here are some general signs of pain that may also help you. </p><h3>Infants (birth to one year of age)</h3><p>With infants, the key signs of pain are related to changes in behaviours. Infants may:</p><ul><li>move less than normal</li><li>cry more often, or if they’re touched or moved</li><li>look pale and sweaty</li><li>not eat well</li><li>be irritable</li><li>not have any interest in their surroundings</li></ul><h3>Toddlers (one to three years)</h3><p>Toddlers can begin to talk about their pain. You can ask them about their pain, using words they already know. They can point to where it hurts. Because you can’t easily tell how much pain your toddler has, you will need to watch for changes in their behaviour also. Toddlers may: </p><ul><li>cry more often</li><li>be irritable or fussy</li><li>not play</li><li>not eat well</li><li>not be easily comforted</li><li>hold a body part that is hurting</li><li>have problems sleeping</li><li>become clingy, especially to primary caregiver</li></ul><h3>Preschool and school-aged children</h3><p>Preschool and school-aged children can talk about where they are hurting. You can also find out how much pain they are in by using the faces pain rating scale. Children can also express where it hurts by colouring on a drawing of a body. Some other signs of pain in school-aged children are: </p><ul><li>crying</li><li>being irritable or fussy</li><li>not playing</li><li>not eating well</li><li>avoiding people</li><li>having a “pained“ face</li><li>holding a body part that is hurting</li><li>not being able to pay attention</li><li>being clingy, especially to primary caregiver</li><li>having stomach aches or even vomiting, which may be signs of anxiety </li></ul><h3>Teenagers</h3><p>Teenagers react to pain like adults. Some may talk about it, while others may try to hide it. Teenagers can rate their pain on a scale of 1 to 10, where 1 is mild discomfort and 10 is the worst pain possible. </p><p>Teenagers who are in pain may:</p><ul><li>become quiet</li><li>have problems concentrating</li><li>have problems sleeping</li><li>not eat well</li><li>become irritable or angry</li><li>withdraw</li><li>have stomach aches or even vomiting, which may be signs of anxiety</li></ul><h3>How do you help your child prepare for procedures?</h3><p>Preparing your child for procedures can reduce their anxiety and fears. This, in turn, can help reduce any discomfort or pain. In some cases, your child may be given sedatives or anaesthetic so they doesn’t feel any pain. </p><p>Here are some general strategies, followed by ideas based on your child’s age.</p><h3>General ideas</h3><ul><li>Talk to child life specialists or other members of the treatment team for ideas on how to prepare your child.</li><li>Make sure that you prepare your child based on their age and understanding.</li><li>Children get their cues from adults. Learn about the procedure so that you understand what is expected of you and your child. Try to relax and don’t make a big deal out of the procedure. Be aware of your anxiety level and not transferring it to your child. </li><li>Don’t place any expectations on your child on how they should react.</li><li>Be honest. Never lie about painful procedures. Your child will become scared and lose trust in you.</li><li>Give your child some information about what to anticipate about the procedure. This will help maintain your child 's trust in you. If the procedure will involve pain, do not tell your child it will not hurt. This can make your child lose trust in you and might make them afraid of subsequent procedures. </li><li>Give your child some choices about their procedure, such as when they will have it done, and let them bring a favourite toy such as a teddy bear. </li><li>Try to stay with your child during painful procedures if possible. This can be a big comfort for your child. You may be able to tell better than others when your child is feeling pain. </li><li>If you are not comfortable or cannot be present during painful procedures, ask someone else familiar to be there for support, such as a grandparent, aunt or uncle, brother or sister, social worker, child life specialist, or nurse. Leave familiar things from home with your child such as toys music, photos, audiotapes, and videotapes of you and your family. Here are some other ideas to help your child prepare based on age: </li></ul><h3>Infants (birth to one year of age)</h3><ul><li>Try to make sure you are calm and confident.</li><li>Try to be there to comfort your child.</li></ul><h3>Toddlers (one to three years)</h3><ul><li>Tell your child what will happen using words they understand. Answer any questions honestly.</li><li>Rehearse the procedure with a toy so your child gets experience during play. For example, you could use puppets or dolls to show where a central line might be placed. </li></ul><h3>Preschool (three to five years) and school-aged (five to 12 years)</h3><ul><li>Tell your child what will happen using words they understand. Answer any questions honestly.</li><li>Address any possible problems before the test or procedure.</li><li>Give your child the opportunity to make decisions where appropriate. For example, they can decide which finger to prick to get a blood sample. </li><li>Rehearse the procedure with a toy so your child gets experience with it during play. For example, you could use puppets or dolls to show where a central line might be placed. </li><li>Read your child books about other children who have gone through similar situations. Your child can also make up their own stories.</li></ul><h3>Teenagers</h3><ul><li>Explain what will happen and answer any questions honestly. Use diagrams if needed.</li><li>Address any possible problems before the test or procedure.</li><li>Where appropriate, present choices and give your teenager the opportunity to make decisions.</li><li>Encouragethemto bring objects to occupy themselves with during the procedure, such as CD players, or books.</li></ul><h3>How can pain be controlled?</h3><p>There are many things you can do to help control your child’s pain. Because you know your child best, you will know which approaches are the most helpful. In addition, the treatment team will provide medicines to control pain if necessary. Here are some general approaches you can take. </p><ul><li>Be supportive, confident, and honest. Prepare your child for painful procedures. Let them play to express their feelings (supportive methods). </li><li>Distract your child with games, music, stories, videos, or by getting them to think of positive images or experiences (cognitive methods). </li><li>Teach your child breathing and relaxing techniques (behavioural methods)</li><li>Provide comfort by touching your child (physical methods).</li></ul><h3>Based on your child’s age, here are some specific examples of what you can do when your child is in pain.</h3><h3>Infants (birth to one year of age)</h3><ul><li>Sing to your child or play soothing music.</li><li>Provide a soother for sucking.</li><li>Rock and pat your child rapidly.</li><li>Cuddle your child.</li><li>Talk or engage your child to distract him.</li><li>Give your child a new or favourite toy to distract them.</li><li>Feed your child</li></ul><h3>Toddlers (one to three years)</h3><ul><li>Hold and cuddle your child.</li><li>Use favourite songs or music to distract them.</li><li>Give your child their favourite objects for comfort.</li><li>Read stories to your child.</li><li>Get them to blow bubbles.</li><li>Have your child act out a painful procedure afterwards</li><li>Use positive reinforcement, such as stickers, coupons, praise, and positive comments. </li></ul><h3>Preschool (three to five years)</h3><ul><li>Talk to your child during procedures.</li><li>Stroke or cuddle your child.</li><li>Tell them stories.</li><li>Use favourite songs or music.</li><li>Use distracting objects (pop-up books, toys with moveable parts).</li><li>Get them to blow bubbles.</li><li>Teach them breathing and relaxing techniques.</li><li>Have your child act out a painful procedure afterwards.</li><li>Use positive reinforcement, such as stickers, coupons, praise, and positive comments</li></ul><h3>School-aged (five to 12 years)</h3><ul><li>Talk to your child during procedures.</li><li>Teach them breathing and relaxing techniques.</li><li>Use distracting objects.</li><li>Use gentle massage.</li><li>Use favourite songs or music.</li><li>Tell them stories or encourage them to tell stories.</li><li><div>Use positive reinforcement, such as stickers, coupons, praise, and positive comments.</div></li></ul><h3>Teenagers</h3><ul><li>Have a conversation during a procedure.</li><li>Teach them breathing and relaxing techniques.</li><li>Use massage.</li><li>Get them to listen to music, read, or watch TV or videos as distraction.</li><li>Encourage them to bring comfort objects to procedures.</li><li>Use positive reinforcement by praising them after a procedure.</li></ul><h2>Breathing and relaxation</h2><p>The simplest form of relaxation is what we call “breathing and blowing.” It can be learned even by three-year-olds and is useful right through adulthood. Mothers may have used a similar technique at the time of the child 's birth. </p><p>Have your child take a deep breath in and blow it out slowly, then repeat this exercise several times. Slow, rhythmic repetition of breathing and blowing helps children relax and gives them some control in situations that may be painful and scary. It is important for your child to learn and practise this exercise before a painful experience. Here are some tips for teaching and practising the technique: </p><ul><li>Have your child pretend that they are a big balloon and are slowly letting all the air out of the balloon.<br></li><li>Have your child pretend that there is a birthday cake in front of them with lots and lots of candles; their job is to blow out all the candles very slowly. </li><li>Young children enjoy using bubbles to learn the breathing and blowing technique. Using a bubble wand, blowing slowly will create a stream of bubbles. You can make a game of this by taking a turn first yourself and then encouraging your child to try. </li><li>Hold a tissue in front of your child 's face, about 10 to 12 inches away. Then get themto see how long they can keep the tissue blowing in the air as they slowly blow out. </li></ul>https://assets.aboutkidshealth.ca/AKHAssets/coping_with_the_pain_of_brain_tumours.jpgCoping with the pain of brain tumours

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