Looking ahead: Key points

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  • Your teen will transition from pediatric to adult healthcare between the ages of 18 and 21 so that they will receive the care they need as they get older.
  • Your teen's pediatric healthcare team will help them prepare for the transition.
  • Your teen may be asked to take part in research to help improve the lives of patients with sickle cell disease. Some research involves clinical trials of treatment and others involve answering questions or taking part in a new program for patients and families.
  • Before consenting to research, make sure you and your teen understand what the research is about, what is expected of your teen during the study, the risks and benefits of doing the study and how your teen can withdraw at any time, even after giving consent.
Last updated: August 10th 2017