Resources and opportunities for self-advocacy

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Advocacy means speaking up for or representing someone’s interests. As you move to the adult healthcare system, you may be attending appointments on your own and will need to speak up for your own needs and interests.

We have offered some initial tips on advocacy, for example on how to talk with your healthcare team and ask the right questions, but there are lots of other resources available. A number of organizations within Canada provide education for people living with chronic pain and advocate on their behalf. Many of them encourage young people to become involved in advocacy. Contact them if you are interested!

Organizations that support people living with chronic pain

Improving the Lives of Children with Pain (ILC Foundation)

The ILC Foundation is an organization that helps all children, teens, young adults and families living with chronic pain to reach their potential through a wide-ranging support network and knowledge sharing program.

Pain BC

Pain BC is a non-profit organization of people living with pain, healthcare providers and a range of representatives from universities, government, business and the non-profit sector. It aims to improve the lives of people in pain through education, empowerment and innovation.

ACTION Ontario

Launched in 2005, ACTION Ontario is a not-for-profit organization that advocates for patients with neuropathic pain (resulting from injury or disease of the nerves, the spinal cord or the brain) to secure better and faster access to pain therapies.

Quebec Pain Research Network

The mission of the Quebec Pain Research Network ​is to conduct research into different aspects of pain and contribute its findings to help improve the quality of life of Quebecers living with chronic pain.

Last updated: May 2nd 2016