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Sickle cell disease: Useful research terms and resources

You and your child may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Sickle cell disease: Useful research terms and resources

You may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Research and clinical trials: An overview

Learn about the different kinds of health research and how research leads to better health care.

About blood and marrow transplant research

Learn about research and clinical trials related to your child's blood and marrow transplant.

Clinical trials and your child

Here are some things to think about if you have been invited to enroll your child in a clinical trial.

Treatment of rhabdoid tumours

This page describes what is involved in the treatment of rhabdoid tumours.

Cancer research and your teenager

Learn about ongoing cancer research and your teenager's role in research and clinical trials.

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving your consent to participate.

The future of cancer research

Find out what type of studies are being done around the world to improve treatments and therapies for cancer, including research on cancer in teens.

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving consent for your child to participate.

Celiac disease: Choosing a post-secondary program

Learn about the extra considerations you may have for picking the right post-secondary program when you are living with celiac disease and follow a strict gluten-free diet.

Developmental dysplasia of the hip: Tips, tricks and messages from caregivers

Read about some of the tips, tricks and messages other caregivers have for parents and caregivers who are new to managing developmental dysplasia of the hip (DDH).

Subtypes of acute myeloid leukemia (AML) in children

Learn about the different subtypes of acute myeloid leukemia (AML) and how they are diagnosed.

Cancer research

Find out how cancer research works, what clinical trials are and what role you play in research.

Arthritis associations

This page provides information about leading arthritis organizations in Canada.

Scoliosis surgery in boys

Most scoliosis research focuses on girls. Read about the similarities and differences between boys and girls in their experiences with scoliosis.

The future of juvenile idiopathic arthritis (JIA)

Arthritis associations

Epilepsy resources and support

A detailed list of epilepsy organizations, research and books. A wide range of topics is covered, including guides for families and the ketogenic diet.

The future of juvenile idiopathic arthritis (JIA)

Facioscapulohumeral muscular dystrophy (FSHD)

Learn about facioscapulohumeral muscular dystrophy (FSHD) disease, a genetic condition that leads to progressive muscle weakness and loss of muscle bulk mostly affecting the facial, shoulder and upper arm muscles.

Chemotherapy for blood and marrow transplant

Learn about chemotherapy your child receives before the blood and marrow transplant.

Epilepsy: An overview

An overview of seizures and epilepsy, with information about treatment options.

Consent, capacity and medical decision-making for children

Learn about the roles of children, parents, caregivers and health-care providers in the shared medical decision-making process. As children mature, they develop the capacity to participate in more decisions about their own health.

Cancer treatments and support therapies

Chemotherapy isn't the only treatment available for cancer. Learn about the different types of treatments for cancer including radiation and surgery, and how other teens have coped with their treatments.