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The future of juvenile idiopathic arthritis (JIA)

The future of juvenile idiopathic arthritis (JIA)

Cyberbullying

​Cyberbullying happens through the internet, texting or social media. Learn about what it looks like and what you can do for your child.

Sickle cell disease: Useful research terms and resources

You and your child may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Sickle cell disease: Useful research terms and resources

You may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

What to know about cyberbullying

Cyberbullying is a type of bullying that uses the internet, texting and social media. Learn what cyberbullying looks like and what to do about it.

Feeding studies

Learn about feeding studies, which find out what your child can drink and eat safely. The feeding study is an X-ray video of what happens from when food enters your child's mouth until after your child swallows.

How to prepare as a caregiver for your child’s surgery

Parents/caregivers may experience a lot of emotions when they learn their child needs surgery. Learn strategies to help you prepare yourself before the surgery so that you can better support your child.

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving your consent to participate.

Sleep studies: Having a polysomnogram

Sleep studies assess what is disrupting your child's sleep. Find out how to prepare your child, what to bring and what to expect during a sleep study.

Echocardiogram (heart ultrasound)

An echocardiogram (or ‘echo’) is a special test that uses ultrasound (sound waves) to take pictures of the heart. Learn about how they are done, and how to help your child prepare for one. 

Talking with your child's school

Having a child with a complex condition means sharing information at school. Learn how to prepare in advance when talking to your child's school.

Nerve conduction studies

Nerve conduction studies are used to try to find out what might be wrong with muscles or nerves. Learn about what is involved in nerve conduction studies.

Hemophilia and finding quality information

Teens learn how to find accurate information about hemophilia.

Staying connected before, during and after a school absence

Missing school because of an illness is not easy for children or their parents. Without daily contact with classmates and teachers, it can be hard for a child to keep in touch and feel connected with school.

Video urodynamic study (VUDS)

A video urodynamics study (VUDS) is a test done by your child’s doctor that provides information about how well your child’s bladder is working.

Letters for your child's school

When you have a child with a complex health condition it is a good idea to write a letter to your child's school to give them the information they need.

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving consent for your child to participate.

Cancer research and your teenager

Learn about ongoing cancer research and your teenager's role in research and clinical trials.

What teens need to know about bullying

Find out what the different types of bullying look like and what to do if you’re being bullied or if someone you know is being bullied.

Bullying

Find out what the different types of bullying look like and what do if your child is being bullied or if they are the bully.

Clinical trials and your child

Here are some things to think about if you have been invited to enroll your child in a clinical trial.

Scoliosis: Pros of having or not having surgery

Read about some of the advantages of having surgery to correct scoliosis, as well as some of the advantages of not having surgery.

Consent, capacity and medical decision-making for children

Learn about the roles of children, parents, caregivers and health-care providers in the shared medical decision-making process. As children mature, they develop the capacity to participate in more decisions about their own health.