Palliative care includes reducing the physical, psychological, social and spiritual suffering that is associated with serious illness. Learn about the role palliative care providers can have in your child’s care.
Learn about the supports available to families coping with pregnancy and infant loss, including perinatal palliative care.
Learn about other types of pain, including recurrent, procedural, and palliative pain. Read about how they are treated. Lumbar punctures are discussed.
Books and websites with information about heart conditions in children.
Nurse practitioners are registered nurses who have additional formal education. Find out how a nurse practitioner is different from a nurse and what they can do to help you during your treatment.
Learn about the different types of brain tumours, how they are diagnosed and treated, and the various supports available to families.
The Blalock-Thomas-Taussig (BTT) shunt helps babies with certain heart defects get enough oxygen until they can have surgery to fix the defect.
The Norwood procedure is usually done as part of a series of surgeries to help the ventricle pump blood out to the body.
Read about pulmonary atresia; a condition involving the pulmonary valve, between the right ventricle and pulmonary artery, not forming completely.
Learn about open-heart, closed-heart, and minimally invasive heart surgery.
Learn about cardiology treatment teams, which focus on treating children with heart conditions. The specific role of each team member is discussed.
A blood and marrow transplant (BMT) replaces the bone marrow system with healthy stem cells. A BMT may be done because there are too few blood stem cells, the blood cells do not work properly or it may be part of cancer treatment.
Learn about the treatment of heart conditions. Find out about the different types of heart treatment and the right questions you should ask the doctor about the treatment.
Read about the various health-care team members who care for babies admitted to the Neonatal Intensive Care Unit.
Your health-care team will involve many different people, all of whom play an important role in your care. This page will tell you more about what to expect from your health-care team.
Proper diabetes care at home includes sharing responsibility and creating and maintaining a routine. Find out how to do this in a way that works for your family.
Learn what to expect when your child makes the switch to adult care, and how to prepare them for taking charge of their own care.
Read about when you will need to transition to adult care, why this is necessary, and advice from other teens who have made the transition.
Find out how to prepare your child for taking charge of their own health-care, as they transition from the paediatric to adult health-care system.
A list of resources for transitioning to adult care.
A list of resources for when your child is transitioning to adult care.
When your child comes to the hospital for surgery, you will meet many different members of the health-care team. Learn about the role each of these people play in your child’s care.
Read about the transition that must be made from paediatric to adult care.
Here is an introduction to scoliosis surgery. Links are provided to pages that give information about what will happen before, during, and after surgery.
Recommendations for navigating your way through the health-care system as a teenager and gaining independence in managing your own health care.
