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Tethered cord

Tethered cord occurs when the spinal cord gets stuck to the bottom of the spinal column and is stretched. Learn about how tethered cord is treated.

Spina bifida

June is Spina Bifida Awareness Month. Learn about the four different types of spina bifida, their causes and how it is diagnosed.

Nutrition before and during pregnancy

​Nutrition plays an important role in supporting a healthy pregnancy. Find out how to get the right nutrients to support you and your baby.

Unrelated donor for a blood and marrow transplant

Learn how unrelated donors are found, before your child's blood and marrow transplant.

Medical care for your child with neurofibromatosis type 1 (NF1)

A child with neurofibromatosis type 1 must have consistent medical care. Parents can use this checklist to ensure their child receives all the care they need.

Spina bifida: Treatment and caring for your child after surgical repair

Learn how your baby's spina bifida is repaired with surgery either before or after they are born. Also learn what happens after surgery and how to take care of your baby at home.

Vein of Galen malformation

A vein of Galen malformation can affect the brain, heart and other organs in the body. Learn what a vein of Galen malformation is, the signs and symptoms, how it is diagnosed, and the treatment options available.

What is a blood and marrow transplant?

Learn what a blood and marrow transplant is, and where blood stem cells come from.

Puberty and fertility in boys after diagnosis and treatment for brain tumours

Detailed information on the effects that brain tumour treatment may have on a child's fertility and pubertal development.

Becoming a parent after a transplant

HIV and pregnancy

If you are infected with HIV and pregnant, learn how certain medicines can lower the risk of passing HIV on to your baby.

The circulatory system before and after birth

Learn about blood circulation in the body, lungs and heart, before and after birth.

Vocal cord dysfunction (VCD) and exercise-induced laryngeal obstruction (EILO): Diagnosis

Learn about the different types of diagnostic tests your child may have to help their health-care team determine if your child has VCD or EILO.

Scoliosis: What to expect in adulthood

Learn what to expect regarding physical and social activities, body image, sexual activity and pregnancy when a teen with scoliosis reaches adulthood.

Neuroinflammatory disorders

Neuroinflammatory disorders are conditions in which inflammation affects the central nervous system (the brain, spinal cord, and/or optic nerves).

Other late effects after an allogeneic blood and marrow transplant

Learn about late term effects after your child's blood and marrow transplant (BMT).

Fertility and radiation

Radiation can affect fertility for both males and females. Learn how it can affect fertility and what your options are for preserving fertility.

Spinal muscular atrophy

Spinal muscular atrophy (SMA) is a genetic disorder that causes muscle weakness and muscle atrophy (shrinking), and can affect a child’s ability to speak, walk, and breathe.

Trisomy 13 (Patau syndrome)

Information for parents about trisomy 13, a rare genetic condition that causes developmental delay and affects many different organ systems.

Tetanus

Learn about tetanus, a life-threatening infection. Updated immunizations in children and adults can prevent tetanus.

Pregnancy and infant loss

Learn about the supports available to families coping with pregnancy and infant loss, including perinatal palliative care.

Sickle cell disease: What is pain?

Learn about how we feel pain, what acute and chronic pain are and the most common causes of pain in people with sickle cell disease.

Sickle cell disease: What is pain?

Learn about how we feel pain, what acute and chronic pain are and the most common causes of pain in people with sickle cell disease.

Friedreich ataxia (FRDA)

Learn about the genetic neuromuscular disorder called Friedreich ataxia (FRDA).