Websites
Heart and Stroke Foundation
www.heartandstroke.com
Canadian Adult Congenital Heart Network
www.cachnet.org
Congenital Heart Information Network
tchin.org
American Heart Association: Children’s Health
www.americanheart.org/presenter.jhtml?identifier=1477
Congenital Heart Surgeons' Society Data Center
www.chssdc.org
Books
If your child has a congenital heart defect: guide for parents
American Heart Association. Council on Cardiovascular Disease in the Young
Dallas, Tex.: American Heart Association, 2002
It's my heart
The Children's Heart Foundation
Lincolnshire, Ill.: The Children's Heart Foundation, 2004
Available online from www.childrensheartfoundation.org
The parent’s guide to children’s congenital heart defects: what they are, how to treat them, how to cope with them
Gerri Freid Kramer and Shari Maurer
New York: Three Rivers Press, c2001.
The heart of a child: what families need to know about heart disorders in children
Catherine A. Neil, Edward B. Clark, and Carleen Clark
Baltimore: Johns Hopkins University Press, 2001.
The heart of a mother
Anna Marie Jaworski
Panama City Beach, Fla.: Baby Hearts Press, 1999
Cardiac kids: a book for families who have a child with heart disease
Vicci Elder
Dayton, Ohio: Tender Hearts, 1994
Palliative care resources
Children’s hospices in Ontario
Financial support