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Heart Conditions Resources


Heart and Stroke Foundation

Canadian Adult Congenital Heart Network

Congenital Heart Information Network

American Heart Association: Children’s Health

Congenital Heart Surgeons' Society Data Center


If your child has a congenital heart defect: guide for parents

American Heart Association. Council on Cardiovascular Disease in the Young
Dallas, Tex.: American Heart Association, 2002

It's my heart

The Children's Heart Foundation
Lincolnshire, Ill.: The Children's Heart Foundation, 2004
Available online from

The parent’s guide to children’s congenital heart defects: what they are, how to treat them, how to cope with them

Gerri Freid Kramer and Shari Maurer
New York: Three Rivers Press, c2001.

The heart of a child: what families need to know about heart disorders in children

Catherine A. Neil, Edward B. Clark, and Carleen Clark
Baltimore: Johns Hopkins University Press, 2001.  

The heart of a mother

Anna Marie Jaworski
Panama City Beach, Fla.: Baby Hearts Press, 1999  

Cardiac kids: a book for families who have a child with heart disease

Vicci Elder
Dayton, Ohio: Tender Hearts, 1994  

Palliative care resources

Children’s hospices in Ontario

Financial support