print article
For optimal print results, please use Internet Explorer, Chrome or Safari.

Heart Conditions Resources


Heart and Stroke Foundation

Canadian Adult Congenital Heart Network

Congenital Heart Information Network

American Heart Association: Children’s Health

Congenital Heart Surgeons' Society Data Center


If your child has a congenital heart defect: guide for parents

American Heart Association. Council on Cardiovascular Disease in the Young
Dallas, Tex.: American Heart Association, 2002

It's my heart

The Children's Heart Foundation
Lincolnshire, Ill.: The Children's Heart Foundation, 2004
Available online from

The parent’s guide to children’s congenital heart defects: what they are, how to treat them, how to cope with them

Gerri Freid Kramer and Shari Maurer
New York: Three Rivers Press, c2001.

The heart of a child: what families need to know about heart disorders in children

Catherine A. Neil, Edward B. Clark, and Carleen Clark
Baltimore: Johns Hopkins University Press, 2001.  

The heart of a mother

Anna Marie Jaworski
Panama City Beach, Fla.: Baby Hearts Press, 1999  

Cardiac kids: a book for families who have a child with heart disease

Vicci Elder
Dayton, Ohio: Tender Hearts, 1994  

Palliative care resources

Children’s hospices in Ontario

Financial support