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Neurofibromatosis type 1 (NF1): ResourcesNNeurofibromatosis type 1 (NF1): ResourcesNeurofibromatosis type 1 (NF1): ResourcesEnglishGeneticsChild (0-12 years);Teen (13-18 years)Eyes;SkinSkin;NervesSupport, services and resourcesCaregivers Adult (19+)NA2010-03-10T05:00:00ZElena Pope, MD, MSc, FRCPC;Patricia Parkin, MD, FRCPC;Stephen Meyn, MD, PhD, FRCPC, FACMG;Andrea Shugar, MS, CGC, CCGC7.0000000000000062.0000000000000242.000000000000Flat ContentHealth A-Z<p>A list of websites with in-depth information on neurofibromatosis type 1 (NF1) in children.</p><p>Here are a few helpful resources on neurofibromatosis type 1 (NF1).</p><h2>Key points</h2> <ul> <li>A list on online resources about neurofibromatosis type 1 where you can get information, personal stories, and learn about living and coping with the condition.</li> </ul>
La neurofibromatose de type 1 (NF1) : documentationLLa neurofibromatose de type 1 (NF1) : documentationNeurofibromatosis type 1 (NF1): ResourcesFrenchGeneticsChild (0-12 years);Teen (13-18 years)Eyes;SkinSkin;NervesSupport, services and resourcesCaregivers Adult (19+)NA2010-03-10T05:00:00ZElena Pope, MD, MSc, FRCPC;Patricia Parkin, MD, FRCPC;Stephen Meyn, MD, PhD, FRCPC, FACMG;Andrea Shugar, MS, CGC, CCGC7.0000000000000062.0000000000000242.000000000000Flat ContentHealth A-Z<p>Liste de sites Web qui contiennent des renseignements détaillés sur la neurofibromatose de type 1 (NF1) chez les enfants.</p><p>Voici quelques ressources utiles sur la neurofibromatose de type 1 (NF1). </p><h2>À retenir</h2><ul><li>Liste de ressources en ligne sur la neurofibromatose de type 1 où l’on peut trouver des renseignements et des récits et apprendre à vivre et à composer avec la maladie.</li></ul>

 

 

Neurofibromatosis type 1 (NF1): Resources1123.00000000000Neurofibromatosis type 1 (NF1): ResourcesNeurofibromatosis type 1 (NF1): ResourcesNEnglishGeneticsChild (0-12 years);Teen (13-18 years)Eyes;SkinSkin;NervesSupport, services and resourcesCaregivers Adult (19+)NA2010-03-10T05:00:00ZElena Pope, MD, MSc, FRCPC;Patricia Parkin, MD, FRCPC;Stephen Meyn, MD, PhD, FRCPC, FACMG;Andrea Shugar, MS, CGC, CCGC7.0000000000000062.0000000000000242.000000000000Flat ContentHealth A-Z<p>A list of websites with in-depth information on neurofibromatosis type 1 (NF1) in children.</p><p>Here are a few helpful resources on neurofibromatosis type 1 (NF1).</p><h2>Key points</h2> <ul> <li>A list on online resources about neurofibromatosis type 1 where you can get information, personal stories, and learn about living and coping with the condition.</li> </ul><h2>Neurofibromatosis Society of Ontario</h2> <p><a target="_blank" href="http://www.nfon.ca/">www.nfon.ca </a></p> <p>The NFSO provides services and support to families affected by NF1. The web site contains information about NF1, personal stories and information about news and events. </p> <h2>British Columbia Neurofibromatosis Foundation</h2> <p><a target="_blank" href="http://bcnf.bc.ca/">www.bcnf.bc.ca </a></p> <p>This web site offers useful pamphlets, videos and patient stories for families. The pamphlets can be ordered online. Links to other NF1 web sites are also found on this site. </p> <h2>Children’s Tumour Foundation</h2> <p><a target="_blank" href="http://www.ctf.org/">www.ctf.org </a></p> <p>This web site contains pamphlets and newsletters on NF1. Topics include:</p> <ul> <li>Questions and answers: Answers to the most commonly asked questions about NF </li> <li>The Child with neurofibromatosis type 1 </li> <li>Facing neurofibromatosis: A guide for teens </li> <li>About neurofibromatosis type 1: A guide for adults </li> <li>Neurofibromatosis: Information for patients and families </li> <li>Achieving in spite of... A booklet on learning disabilities </li> </ul> <h2>The Hospital for Sick Children (SickKids): AboutKidsHealth</h2> <p><a target="_blank" href="https://pie.med.utoronto.ca/htbw/module.html?module=genetics">How the Body Works: Genetics</a></p> <p>Learn how the body works by watching animations and drawings. In the Genetics section, you can learn about:</p> <ul> <li>genes and chromosomes </li> <li>inheritance </li> <li>genetics and health </li> </ul> <h2>Understanding NF1</h2> <p><a target="_blank" href="http://www.understandingnf1.org/exp/int_exp_wci.html">www.understandingnf1.org </a></p> <p>This web site has videos of NF1 expert Dr. Bruce Korf speaking with parents. Patients discuss how they live and cope with NF1. The site offers a glossary to help you understand what NF1 terms mean. </p>Neurofibromatosis type 1 (NF1): Resources

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