Non-fasting guidelines for children with metabolic disordersNNon-fasting guidelines for children with metabolic disordersNon-fasting guidelines for children with metabolic disordersEnglishMetabolicChild (0-12 years);Teen (13-18 years)Stomach;Small Intestine;Large Intestine/ColonDigestive systemSupport, services and resourcesCaregivers Adult (19+)NA2010-07-13T04:00:00ZSara Goldberg, RN, MN;Laura Burr, MSc, RD;Komudi Siriwardena MBChB, FRACP (NZ);Andreas Schulze MD, FRCPC;Julian Raiman MB BS MSc MRCP(UK)8.0000000000000067.0000000000000310.000000000000Flat ContentHealth A-Z<p>An information sheet for parents with children who have a metabolic condition. Fasting could be dangerous for children with a metabolic disorder.</p><p>This is an information sheet for patients with metabolic conditions.</p><h2>Key points</h2> <ul> <li>Your child's health care team will tell you the longest time your child can go without eating or drinking depending on your child's metabolic condition.</li> <li>Before agreeing to any test where your child is asked to go longer without eating or drinking than is recommended please contact their health care team.</li> </ul><h2>At SickKids:</h2><p>The name of your child's condition is ________________________________. </p><p>Your child is followed by the __________________________________ service at The Hospital for Sick Children (SickKids) by Dr. _____________________________.</p><p>If you have an urgent medical question or concern, call the on-call doctor at any time, day or night. To reach the on-call doctor, call <strong>416-813-7500</strong> and say "I want to speak to the ___________________________doctor on call." You will then have to hold for a short time until the doctor gets on the phone.</p><p>If you have a non-urgent question or concern, you can call one of these people Monday to Friday from 8:00 in the morning to 4:00 in the afternoon at the following phone numbers:</p><ul><li>For medical questions: Nurse: ____________________________________________ </li><li>For questions about food and drink: Dietitian: ___________________________ </li><li>For community support: Social worker: ___________________________________</li></ul><p>If you have difficulty with speaking English, you can say your name, phone number and the language you speak when the doctor, nurse, dietitian or social worker answers the phone. They will call you back with an interpreter.</p><p>To change or cancel an appointment, or to find out when your next appointment is, call:</p><ul><li>Information coordinator: __________________________<br></li></ul><p>If there is an emergency, call 911 or bring your child to your closest emergency department.<br></p>
Lignes directrices sur l’interdiction de jeûne d’enfants atteints d’un trouble métaboliqueLLignes directrices sur l’interdiction de jeûne d’enfants atteints d’un trouble métaboliqueNon-fasting guidelines for children with metabolic disordersFrenchMetabolicChild (0-12 years);Teen (13-18 years)Stomach;Small Intestine;Large Intestine/ColonDigestive systemSupport, services and resourcesCaregivers Adult (19+)NA2010-07-13T04:00:00ZSara Goldberg, RN, MN;Laura Burr, MSc, RD;Komudi Siriwardena MBChB, FRACP (NZ);Andreas Schulze MD, FRCPC;Julian Raiman MB BS MSc MRCP(UK)8.0000000000000067.0000000000000310.000000000000Flat ContentHealth A-Z<p>Une fiche d’information pour les parents dont l’enfant est atteint d’un trouble métabolique. Le jeûne pourrait être dangereux pour un enfant atteint d’un trouble métabolique.</p><p>Voici une fiche d’information pour les patients atteints d’un problème métabolique.</p><h2>À retenir</h2><ul> <li>L’équipe soignante de votre enfant vous dira quelle est la durée maximale pendant laquelle votre enfant peut rester sans manger ni boire selon son état métabolique.</li><li>Avant d’accepter que votre enfant subisse un examen pour lequel il ne doit ni boire ni manger pendant une période plus longue que celle qui est recommandée, veuillez communiquer avec son équipe soignante.</li></ul><h2>À l'hôpital SickKids :</h2><p>Le nom de la maladie de votre enfant est ________________________________. </p><p>Votre enfant est suivi par le service de __________________________________ à l'hôpital The Hospital for Sick Children (SickKids) par le Dr_________________________.</p><p>Si vous avez une question ou une préoccupation médicale urgente, veuillez communiquer avec le médecin de garde, à toute heure du jour ou de la nuit. Pour communiquer avec le médecin de garde, composez le 416-813-7500 , et dites « Je veux parler au médecin de garde pour ___________________________. » Puis, vous patienterez pendant un court moment, jusqu’à ce que le médecin réponde.</p><p>Si vous avez une question ou une préoccupation non urgente, vous pouvez appeler l’une ou l’autre de ces personnes, du lundi au vendredi, de 8 h à 16 h, aux numéros de téléphone qui suivent :</p><ul><li>Pour des questions d’ordre médical : infirmier : __________________________________________</li><li>Pour des questions sur les boissons ou la nourriture : diététiste : _______________________</li><li>Pour le soutien communautaire : travailleur social : ___________________________________________</li></ul><p>Si vous avez de la difficulté à parler en anglais, vous pouvez laisser votre nom, votre numéro de téléphone et la langue que vous parlez quand le médecin, l’infirmier, le diététiste ou le travailleur répond à l’appel. Ils vous rappelleront en présence d’un interprè</p><p>Pour modifier ou annuler un rendez vous, ou pour connaître la date de votre prochain rendez vous, veuillez communiquer avec le :</p><ul><li>coordonnateur de l’information : __________________________<br></li></ul><p>En cas d’urgence, veuillez composer le 911 ou amenez votre enfant au service d’urgence le plus près.</p>

 

 

Non-fasting guidelines for children with metabolic disorders1136.00000000000Non-fasting guidelines for children with metabolic disordersNon-fasting guidelines for children with metabolic disordersNEnglishMetabolicChild (0-12 years);Teen (13-18 years)Stomach;Small Intestine;Large Intestine/ColonDigestive systemSupport, services and resourcesCaregivers Adult (19+)NA2010-07-13T04:00:00ZSara Goldberg, RN, MN;Laura Burr, MSc, RD;Komudi Siriwardena MBChB, FRACP (NZ);Andreas Schulze MD, FRCPC;Julian Raiman MB BS MSc MRCP(UK)8.0000000000000067.0000000000000310.000000000000Flat ContentHealth A-Z<p>An information sheet for parents with children who have a metabolic condition. Fasting could be dangerous for children with a metabolic disorder.</p><p>This is an information sheet for patients with metabolic conditions.</p><h2>Key points</h2> <ul> <li>Your child's health care team will tell you the longest time your child can go without eating or drinking depending on your child's metabolic condition.</li> <li>Before agreeing to any test where your child is asked to go longer without eating or drinking than is recommended please contact their health care team.</li> </ul><p>The name of your child’s condition is ________________________________. </p><p>This metabolic condition affects the way your child's body handles _______________. Because of your child’s condition, your child should not go for longer than _____ hours without food or drink. Water does not count as a drink because it does not provide any calories.</p><p>Your child may be told to go longer than _____ hours without food or drink for a different test or procedure. Please contact your child’s health care team before agreeing. This may not be safe for your child.</p><p>We have also given you an emergency letter with more details.</p><ul><li>Your child may need to see another physician or go to another hospital emergency room. Show your emergency letter to help the other physician understand what care your child needs.</li><li>Please carry this letter with you at all times in case you need it. Place it somewhere that is easy to find, such as your wallet or purse.</li><li>You can make as many copies of the emergency letter as you want to make sure that there is always one near your child.</li></ul><p>Contact the metabolic doctor on call at any time of day or night if your child has any signs of:</p><ul><li> <a href="/Article?contentid=746&language=English">vomiting</a> (throwing up)</li><li> <a href="/Article?contentid=7&language=English">diarrhea</a></li><li> <a href="/Article?contentid=30&language=English">fever</a></li><li>excessive sleepiness</li><li>irritability (crankiness)</li><li>confusion</li><li>eating or drinking less than usual</li></ul><p>_____________________________________________________________________________________________________________________</p><p>_____________________________________________________________________________________________________________________</p><p>_____________________________________________________________________________________________________________________</p> <p>If your child has trouble breathing or prolonged seizures (convulsions), call 911 or go to your nearest emergency department.</p><p>Your child is followed by the hospital's genetic metabolics clinic service by Dr. ___________________________________.</p><h2>At SickKids:</h2><p>The name of your child's condition is ________________________________. </p><p>Your child is followed by the __________________________________ service at The Hospital for Sick Children (SickKids) by Dr. _____________________________.</p><p>If you have an urgent medical question or concern, call the on-call doctor at any time, day or night. To reach the on-call doctor, call <strong>416-813-7500</strong> and say "I want to speak to the ___________________________doctor on call." You will then have to hold for a short time until the doctor gets on the phone.</p><p>If you have a non-urgent question or concern, you can call one of these people Monday to Friday from 8:00 in the morning to 4:00 in the afternoon at the following phone numbers:</p><ul><li>For medical questions: Nurse: ____________________________________________ </li><li>For questions about food and drink: Dietitian: ___________________________ </li><li>For community support: Social worker: ___________________________________</li></ul><p>If you have difficulty with speaking English, you can say your name, phone number and the language you speak when the doctor, nurse, dietitian or social worker answers the phone. They will call you back with an interpreter.</p><p>To change or cancel an appointment, or to find out when your next appointment is, call:</p><ul><li>Information coordinator: __________________________<br></li></ul><p>If there is an emergency, call 911 or bring your child to your closest emergency department.<br></p>Non-fasting guidelines for children with metabolic disorders

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