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Organization tips for parents of a child with a complex illnessOOrganization tips for parents of a child with a complex illnessOrganization tips for parents of a child with a complex illnessEnglishNAChild (0-12 years);Teen (13-18 years)NANASupport, services and resourcesCaregivers Adult (19+)NA2012-06-13T04:00:00ZNA7.0000000000000065.0000000000000311.000000000000Flat ContentHealth A-Z<p>Taking care of a medically complex child can be a daunting task. Staying organized may help to make your life easier.</p><p>Being a full-time case manager on top of parenting a medically complex child can be a daunting task. Finding ways to do things faster and smarter can make your life easier down the road.</p><h2>Key points</h2> <ul> <li>There is a lot to keep track of when you are caring for a child with a complex condition. Staying organized may help to make your life easier.</li> <li>Suggestions to staying organized include designating a work area; having the right tools; creating a status document; have a system to keep track of different types of information; and find a daily calendar system that works for you.</li> </ul>
Conseils en matière d’organisation destinés aux parents d’un enfant atteint d’une maladie complexeCConseils en matière d’organisation destinés aux parents d’un enfant atteint d’une maladie complexeOrganization tips for parents of a child with a complex illnessFrenchNAChild (0-12 years);Teen (13-18 years)NANASupport, services and resourcesCaregivers Adult (19+)NA2012-06-13T04:00:00Zna Flat ContentHealth A-Z<p>Le défi lié aux soins d’un enfant atteint d’une maladie complexe peut s’avérer colossal. En restant organisé, vous vous faciliterez la vie.<br></p><p>Le défi lié au rôle de gestionnaire de cas à temps plein, combiné à celui de parent d’un enfant atteint d’une maladie complexe, peut s’avérer colossal. En trouvant des façons de faire les choses plus rapidement et de manière plus intelligente, vous vous faciliterez la vie à long terme. Voici quelques suggestions pour vous aider à rester organisé.</p><h2>À retenir</h2><ul><li>Il y a beaucoup d’éléments à surveiller lorsque vous vous occupez d’un enfant atteint d’une maladie complexe. En restant organisé, vous vous faciliterez la vie.</li><li>Pour rester organisé, nous vous suggérons notamment de désigner une aire de travail, de disposer des bons outils, de créer un document de suivi, d’avoir un système pour assurer le suivi de différents types d’information à portée de main, et de trouver un système de calendrier quotidien qui fonctionne pour vous.</li></ul>

 

 

Organization tips for parents of a child with a complex illness1148.00000000000Organization tips for parents of a child with a complex illnessOrganization tips for parents of a child with a complex illnessOEnglishNAChild (0-12 years);Teen (13-18 years)NANASupport, services and resourcesCaregivers Adult (19+)NA2012-06-13T04:00:00ZNA7.0000000000000065.0000000000000311.000000000000Flat ContentHealth A-Z<p>Taking care of a medically complex child can be a daunting task. Staying organized may help to make your life easier.</p><p>Being a full-time case manager on top of parenting a medically complex child can be a daunting task. Finding ways to do things faster and smarter can make your life easier down the road.</p><h2>Key points</h2> <ul> <li>There is a lot to keep track of when you are caring for a child with a complex condition. Staying organized may help to make your life easier.</li> <li>Suggestions to staying organized include designating a work area; having the right tools; creating a status document; have a system to keep track of different types of information; and find a daily calendar system that works for you.</li> </ul><p>Here are some suggestions to help you stay organized.</p><ul><li> Designate a work area in your home and invest in the tools you will need for day to day communication. These could include a computer, printer, home fax/copier and a large wall calendar.</li><li> Create a status document. Organize all your activities by subject ( <a href="/Article?contentid=1145&language=English">school accommodation</a>, advocacy, <a href="/Article?contentid=1155&language=English">health service agencies</a>, <a href="/Article?contentid=1150&language=English">funding requests</a>) and then log all your phone calls, emails and updates under each subject by date. This will help you stay on top of things, especially when you are waiting to hear back from several people. </li><li> Decide on a system to keep your information. You may want to use binders, hanging file folders and/or your computer. Consider the best places to keep the following: <ul><li>list of current medications and dosages</li><li>medical summaries</li><li>full medical history</li><li>care instructions </li><li>school IEP plans</li><li>medical supply orders</li><li>health care provider contact information</li><li>receipts for out-of-pocket expenses; you will need these when applying for <a href="/Article?contentid=1150&language=English">tax credits</a></li></ul></li><li> Find a daily calendar system that works best with your personality. If you are a visual person, you may benefit from an old-fashion pen and paper agenda; if you are a techie, you may be better suited to using an online calendar tool or smartphone app.</li></ul><img alt="" src="https://assets.aboutkidshealth.ca/AKHAssets/organization_tips_for_parents_complex_illness.jpg" style="BORDER:0px solid;" />https://assets.aboutkidshealth.ca/AKHAssets/organization_tips_for_parents_complex_illness.jpgOrganization tips for parents of a child with a complex illness

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