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Parenting your child with a blood and marrow transplantPParenting your child with a blood and marrow transplantParenting your child with a blood and marrow transplantEnglishHaematology;Immunology;OncologyChild (0-12 years);Teen (13-18 years)BodyImmune systemNAAdult (19+)NA2009-11-30T05:00:00ZJohn Doyle, MD, FRCPC, FAAPChristine Armstrong, RN, MScN, NP Peds7.0000000000000074.0000000000000658.000000000000Flat ContentHealth A-Z<p>Learn tips on how you can cope, after your child's blood and marrow transplant (BMT).</p><p>Waiting in the hospital after your child's blood and marrow transplant (BMT) is a challenging time for many parents. Learning about your child's daily routine such as medicines, tests and possible complications can be overwhelming. You also may feel anxious about the strict precautions you have to take until your child's immune system recovers.</p><p>To be a good caregiver to your child, it is important that you take care of yourself. Find someone you can talk to, who is a good listener and lets you talk about how you feel. You may find certain friends or a small circle of friends very helpful. Or you might take comfort in the families of other transplant patients. Professional counseling or talking with clergy may also help.</p><p>Here are some tips that can help you cope while your child is in the hospital:</p><h2>Key points</h2> <ul><li>It is important for parents and caregivers to maintain a positive attitude around their child, stay informed, and advocate for their child.</li> <li>In order to be an effective caregiver, you must take time for yourself and accept help when you can.</li></ul>
Parenter votre enfant avec une greffe de sang et de moelle osseusePParenter votre enfant avec une greffe de sang et de moelle osseuseParenting your child with a blood and marrow transplantFrenchHaematology;Immunology;OncologyChild (0-12 years);Teen (13-18 years)BodyImmune systemNAAdult (19+)NA2009-11-30T05:00:00ZJohn Doyle, MD, FRCPC, FAAP Christine Armstrong, RN, MScN, NP Peds7.0000000000000074.0000000000000658.000000000000Flat ContentHealth A-Z<p>Apprendrez des conseils pour gérer la maladie après la greffe de sang et de moelle osseuse (GSM) de votre enfant.</p><p>Attendre à l’hôpital après la greffe de sang et de moelle osseuse (GSM) de son enfant est un moment difficile pour de nombreux parents. Il peut aussi être très déroutant d’entendre parler du déroulement d’une journée de l’enfant, comme les médicaments, des tests et des complications possibles. Il se peut aussi que vous soyez intimidé par toutes les précautions strictes que vous devez prendre jusqu’à ce que le système immunitaire de votre enfant se soit rétabli.</p> <p>Pour être un bon soignant, il importe de prendre soin de soi-même. Trouvez quelqu’un à qui vous pouvez parler, qui a une bonne capacité d’écoute et qui vous laisse parler de vos sentiments. Pour ce faire, certains amis ou un petit cercle d’amis pourraient être utiles. Vous pourriez aussi trouver du réconfort auprès de familles d’autres patients greffés. Enfin, du counselling professionnel ou une rencontre avec un membre du clergé pourrait aussi aider.</p> <p>Voici des conseils qui peuvent vous aider à gérer la situation quand votre enfant est à l’hôpital.</p><h2>À retenir</h2> <ul><li>Il est important que les parents et les soignants maintiennent une attitude positive au sujet de leur enfant, restent informés et défendent les intérêts de l’enfant.</li> <li>Pour être un aidant efficace, vous devez prendre du temps pour vous-même et accepter de l’aide quand vous le pouvez.</li></ul>

 

 

Parenting your child with a blood and marrow transplant1557.00000000000Parenting your child with a blood and marrow transplantParenting your child with a blood and marrow transplantPEnglishHaematology;Immunology;OncologyChild (0-12 years);Teen (13-18 years)BodyImmune systemNAAdult (19+)NA2009-11-30T05:00:00ZJohn Doyle, MD, FRCPC, FAAPChristine Armstrong, RN, MScN, NP Peds7.0000000000000074.0000000000000658.000000000000Flat ContentHealth A-Z<p>Learn tips on how you can cope, after your child's blood and marrow transplant (BMT).</p><p>Waiting in the hospital after your child's blood and marrow transplant (BMT) is a challenging time for many parents. Learning about your child's daily routine such as medicines, tests and possible complications can be overwhelming. You also may feel anxious about the strict precautions you have to take until your child's immune system recovers.</p><p>To be a good caregiver to your child, it is important that you take care of yourself. Find someone you can talk to, who is a good listener and lets you talk about how you feel. You may find certain friends or a small circle of friends very helpful. Or you might take comfort in the families of other transplant patients. Professional counseling or talking with clergy may also help.</p><p>Here are some tips that can help you cope while your child is in the hospital:</p><h2>Key points</h2> <ul><li>It is important for parents and caregivers to maintain a positive attitude around their child, stay informed, and advocate for their child.</li> <li>In order to be an effective caregiver, you must take time for yourself and accept help when you can.</li></ul><h2>Keep positive</h2><p>Children notice your attitude and body language, regardless of their age. Dwelling on the positive aspects of your child’s condition rather than on the negative will help make the hospital stay not seem as long. Your child needs to feel secure and comforted. You cannot waste energy worrying about something you do not know about and cannot control. Try not to dwell on the past and do not worry about tomorrow. Enjoy the day for what it has to offer.</p><h3>Be your child’s advocate</h3><p>Being your child’s caregiver also means being their advocate. You know your child better than anyone. Transplant doctors and nurses will be working very hard to give your child the best care, but they may not always pick up signs when your child is feeling pain as easily as you. </p><h3>Become informed</h3><p>Find out what time the doctors make their rounds each day so you know when you can ask questions. Do not be afraid to stop the doctor anytime you do not understand what they are saying. </p><p>Keep a diary and carry it with you. This way you can write down all the information so you can help keep track of important information.</p><h2>Take time for yourself</h2><p>You need to take time off for yourself, if you want to give your child the best care. Take time to relieve the stress of care-giving, and find some perspective. To help yourself take a break, you can:</p><ul><li>take a walk</li><li>watch a movie</li><li>visit with friends</li><li>take a nap.</li></ul><h2>Visit home</h2><p>If you have other children at home, do not forget that they need you as well. Arrange to take visits home for a break. Also, try to have family members visit you at the hospital. You can visit in the parent lounge or go down to the cafeteria for a break.</p><h2>Accepting help</h2><p>Taking care of your sick child, while managing the usual household and work tasks can be more than you can handle. Invite and accept help from others, such as extended family members and friends. They often truly want to help, but do not know what you really need.</p><p>Developing a strong network of support before your child’s transplant will give you the time to focus on caring for your child.</p><h2>Be flexible and patient</h2><p>Plan the best way you can, but be prepared for the unexpected. There is no way to predict how your child’s treatment will turn out. You have to prepare for both good and bad times during your child’s treatment. It may take your child some time to recover from complications, if they occur. Take things one day at a time to help you cope.</p>https://assets.aboutkidshealth.ca/AKHAssets/parenting_your_child_with%20_a_blood_and_marrow_transplant.jpgParenting your child with a blood and marrow transplant

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