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Understanding your child's epilepsy diagnosisUUnderstanding your child's epilepsy diagnosisUnderstanding your child's epilepsy diagnosisEnglishNeurologyChild (0-12 years);Teen (13-18 years)BrainNervous systemConditions and diseasesCaregivers Adult (19+) EducatorsNA2010-02-04T05:00:00ZElizabeth J. Donner, MD, FRCPC10.000000000000056.0000000000000334.000000000000Flat ContentHealth A-Z<p>Find out how epilepsy is diagnosed and what questions to ask to make sure you understand the diagnosis.<br></p><p>Making a diagnosis involves identifying a condition or disease based on signs and symptoms. If your child has signs or symptoms that make your child's doctor suspect your child has epilepsy, they will do a thorough neurological assessment and order some diagnostic tests. </p><h2>Key points</h2> <ul><li>An epilepsy diagnosis can include the type(s) of seizures, whether the seizure has a known cause and whether an epilepsy syndrome exists.</li> <li>You may feel overwhelmed as you learn about your child's diagnosis. Write down what you learn and record any questions you may want to ask.</li> <li>To make sure you understand the diagnosis, ask how the condition affects your child physically and mentally, what type of treatment is recommended and what you can do to help your child in the meantime.</li> <li>If your doctor cannot answer all your questions, talk to the clinic nurse, research your child's condition on reputable web sites and reach out to other parents of children with epilepsy.</li></ul>
Comprendre l'épilepsie et son diagnosticCComprendre l'épilepsie et son diagnosticUnderstanding epilepsy diagnosisFrenchNeurologyChild (0-12 years);Teen (13-18 years)BrainNervous systemConditions and diseasesCaregivers Adult (19+) EducatorsNA2010-02-04T05:00:00ZElizabeth J. Donner, MD, FRCPC10.000000000000056.00000000000000Flat ContentHealth A-Z<p>Voyez brièvement comment on pose un diagnostic d’épilepsie et comment bien le comprendre.</p><p>Poser un diagnostic exige de déterminer un état ou une maladie en fonction de signes et de symptômes. Si votre enfant présente des signes ou des symptômes qui amènent son médecin à soupçonner qu’il est atteint d’épilepsie, celui-ci procédera à une évaluation neurologique approfondie et demandera que des tests diagnostiques soient effectués.</p><ul><li>Un diagnostic d’épilepsie détermine le ou les types de crises observées, si ces crises ont une cause connue et si un syndrome d’épilepsie existe.</li> <li>Il se peut que vous soyez pris de désarroi en apprenant le diagnostic de votre enfant. Notez ce que vous avez appris et toutes les questions que vous aimeriez poser.</li> <li>Pour vous assurer d’avoir bien compris le diagnostic, demandez qu’on vous explique les effets de la maladie sur votre enfant au plan physique et mental, le traitement qui est recommandé et ce que vous pouvez faire pour l’aider en attendant.</li> <li>Si votre médecin ne répond pas à toutes vos questions, parlez-en à l’infirmier clinicien, faites des recherches sur la maladie de votre enfant sur des sites Web dignes de confiance et consultez d’autres parents dont l’enfant est atteint d’épilepsie.</li></ul>

 

 

Understanding your child's epilepsy diagnosis2061.00000000000Understanding your child's epilepsy diagnosisUnderstanding your child's epilepsy diagnosisUEnglishNeurologyChild (0-12 years);Teen (13-18 years)BrainNervous systemConditions and diseasesCaregivers Adult (19+) EducatorsNA2010-02-04T05:00:00ZElizabeth J. Donner, MD, FRCPC10.000000000000056.0000000000000334.000000000000Flat ContentHealth A-Z<p>Find out how epilepsy is diagnosed and what questions to ask to make sure you understand the diagnosis.<br></p><p>Making a diagnosis involves identifying a condition or disease based on signs and symptoms. If your child has signs or symptoms that make your child's doctor suspect your child has epilepsy, they will do a thorough neurological assessment and order some diagnostic tests. </p><h2>Key points</h2> <ul><li>An epilepsy diagnosis can include the type(s) of seizures, whether the seizure has a known cause and whether an epilepsy syndrome exists.</li> <li>You may feel overwhelmed as you learn about your child's diagnosis. Write down what you learn and record any questions you may want to ask.</li> <li>To make sure you understand the diagnosis, ask how the condition affects your child physically and mentally, what type of treatment is recommended and what you can do to help your child in the meantime.</li> <li>If your doctor cannot answer all your questions, talk to the clinic nurse, research your child's condition on reputable web sites and reach out to other parents of children with epilepsy.</li></ul><p>Sometimes an epilepsy diagnosis can be made right away, but sometimes it takes a while to figure out what is wrong, especially if a child is very young or has features of different seizure types. Once the doctor knows what is happening with your child, they will sit down with you and explain the diagnosis and treatment. </p><p>The diagnosis may include:</p><ul><li>the type(s) of seizures your child is having</li><li>whether the seizures are idiopathic (no apparent cause), symptomatic (caused by a known, underlying problem) or cryptogenic (seem to be caused by an underlying problem, but the exact cause is unknown)</li><li>a specific epilepsy syndrome.</li></ul><p>It is difficult to explain everything about epilepsy at one meeting. Depending on the situation, it may take several sessions to talk about all the issues. For this reason, bring paper and a pen and take notes to help you remember the new information you may be learning and to write down questions as you think of them. You may also bring a relative or friend to take notes for you. </p><p>The doctor will present a treatment plan during one of your meetings. The treatment plan will likely include medication as a first step. In some cases, an operation may be needed. The doctor will explain and recommend the best choice for treatment for your child’s situation. </p><h2>Making sure you understand the diagnosis</h2><p>To make sure you understand the diagnosis fully, consider asking the doctor the following questions: </p><ul><li>What is the condition? (Be sure to write down the formal name.)</li><li>How is it affecting my child physically?</li><li>How is it affecting my child mentally?</li><li>Where do we go from here?</li><li>What kind of treatment will my child need, and when?</li><li>Will you or another specialist provide the treatment?</li><li>Who else will be involved in my child’s care?</li><li>What can I do to help my child in the meantime?</li><li>What does the future hold?</li></ul><p>If, after speaking with the doctor, you still don’t understand your child's diagnosis, be sure to ask again. Many conditions are quite complicated and need to be explained a few times.</p><p>Write down the information as the doctor discusses it with you. You may be overwhelmed and confused by the diagnosis, which makes it difficult to listen carefully. Having it written down means you can reflect on it later, once you’ve come to terms with the news. </p><p>Healthcare professionals are here to help. And if English is not your first language, the services of an interpreter can be arranged. </p><p>It is your right to be informed, and it is essential that you are able to understand your child’s condition to make decisions about treatment. If the doctor is unable to see you, the clinic nurse is also a good contact and can help answer your questions. </p><p>You can also learn more about the condition by research it at the library, gathering brochures and books from support organizations and talking to people whose children have experienced something similar. Many people find that knowing more helps them cope with what is happening. </p><p>To guide you in finding out what you already know about epilepsy, and what you need to learn more about, check out these resources:</p><ul><li> <a target="_blank" href="https://assets.aboutkidshealth.ca/akhassets/PDF_Parents_Checklist.pdf">Epilepsy Checklist – What do you know about your child’s epilepsy?</a></li><li> <a target="_blank" href="https://assets.aboutkidshealth.ca/akhassets/PDF_Teens_Checklist.pdf">Epilepsy Checklist for Teens – What do you know about your epilepsy?</a></li></ul>https://assets.aboutkidshealth.ca/AKHAssets/girl_in_bed_mom_comforting_BRAND-PHO_EN.jpgUnderstanding your child's epilepsy diagnosis

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