JIA resourcesJJIA resourcesJIA resourcesEnglishAdolescent;RheumatologyChild (0-12 years);Teen (13-18 years)NANASupport, services and resourcesAdult (19+)NA2017-01-31T05:00:00ZJennifer Stinson RN-EC, PhD, CPNP;Lori Tucker, MD;Tonya Palermo, PhD;Miriam Granger, MSW, RSW;Laurie Horricks, FN, MN;Lynn Spiegel, MD, FRCPC8.0000000000000058.2000000000000710.000000000000Flat ContentHealth A-Z<p>This page gives some useful resources: books and websites that can help you learn more about arthritis. It also gives tips on assessing the quality of information you might find on arthritis websites.</p> <p>There are lots of resources that can allow you to better help your teenager learn to manage their JIA.</p><h2>Key points</h2> <ul><li>There are many different resources to help you and your teenager manage JIA including books and websites.</li> <li>Use the acronym SCREEN to help you evaluate the credibility of websites.</li></ul>
Ressources pour l'AIJRRessources pour l'AIJJIA resourcesFrenchAdolescent;RheumatologyChild (0-12 years);Teen (13-18 years)NANASupport, services and resourcesAdult (19+)NA2017-01-31T05:00:00ZJennifer Stinson RN-EC, PhD, CPNP;Lori Tucker, MD;Tonya Palermo, PhD;Miriam Granger, MSW, RSW;Laurie Horricks, FN, MN;Lynn Spiegel, MD, FRCPC000Flat ContentHealth A-Z<p>Cette page donne des ressources utiles; on y présente une liste de livres et de sites Web qui peuvent vous permettre d'en apprendre plus sur l'arthrite. Vous y trouverez aussi des conseils pour évaluer la qualité de l'information.</p><p>​En plus de l’information contenue dans ce site Web, il existe de nombreuses ressources dont tu peux te servir pour apprendre à gérer ton AIJ. </p><h2>À retenir</h2><ul><li>On a publié une foule de ressources qui vous aideront, votre adolescent et vous-même, à prendre l’AIJ en charge, dont des livres et des sites Web.</li> <li>Souvenez-vous du mot-clé SCREEN pour évaluer la crédibilité de ces sites. </li></ul>

 

 

 

 

JIA resources1104.00000000000JIA resourcesJIA resourcesJEnglishAdolescent;RheumatologyChild (0-12 years);Teen (13-18 years)NANASupport, services and resourcesAdult (19+)NA2017-01-31T05:00:00ZJennifer Stinson RN-EC, PhD, CPNP;Lori Tucker, MD;Tonya Palermo, PhD;Miriam Granger, MSW, RSW;Laurie Horricks, FN, MN;Lynn Spiegel, MD, FRCPC8.0000000000000058.2000000000000710.000000000000Flat ContentHealth A-Z<p>This page gives some useful resources: books and websites that can help you learn more about arthritis. It also gives tips on assessing the quality of information you might find on arthritis websites.</p> <p>There are lots of resources that can allow you to better help your teenager learn to manage their JIA.</p><h2>Key points</h2> <ul><li>There are many different resources to help you and your teenager manage JIA including books and websites.</li> <li>Use the acronym SCREEN to help you evaluate the credibility of websites.</li></ul><h2>Books</h2><p>Huegel, K. (2002). <em>Young People and Chronic Illness: True Stories, Help and Hope.</em> Monarch Books: Toronto.</p><p>Kaufman, M. (2005). <em>Easy For You To Say: Q&A's for Teens Living With a Chronic Illness or Disability.</em> Key Porter Books: Toronto</p><p>Kaufman, M., Odette, F. & Silverberg, C. (2003). <em>Ultimate Guide to Sex and Disability: For all of us who live with Disabilities, Chronic Pain and Illness.</em> Cleis Press.</p><p>Krane, E. & Mitchell, D. (2005). <em>Relieve Your Child’s Chronic Pain: A Doctor’s Program for Easing Headaches, Abdominal Pain, Fibromyalgia, Juvenile Rheumatoid Arthritis, and More.</em> Fireside.</p><p>Kuttner, L. (2006). <em>A Child in Pain: How to Help, What to Do.</em> Hartley & Marks Publishers.</p><p>McDonagh, J. & Patience White, P. (2008). <em>Adolescent Rheumatology.</em> Informa Healthcare: London.</p><p>McGrath, P.J., Finley, G.A., Ritchie, J. (1994). <em>Pain, Pain Go Away: Helping Children with Pain</em> Association for the Care of Children's Health.</p><p>Zeltzer, L. & Blackett Schlank, C. (2005). <em>Conquering Your Child’s Chronic Pain: A Pediatrician’s Guide for Reclaiming a Normal Childhood.</em> HarperResource.</p><p>Zeltzer, L. & Zeltzer, P. (2016). <em>Pain in Children and Young Adults: The Journey Back to Normal: Two Pediatricians’ Mind-Body Guide for Parents.</em></p><p>The Arthritis Foundation. (2001). <em>The Arthritis Foundation’s Tips for Good Living with Arthritis.</em> Arthritis Foundation: Toronto.</p><h2>Websites</h2><p> <a href="http://cassieandfriends.ca/">Cassie + Friends: A Society for Children Affected by Juvenile Arthritis and Other Rheumatic Diseases</a></p><p> <a href="http://www.arthritis.ca/">The Arthritis Society</a></p><p> <a href="http://www.orthop.washington.edu/?q=patient-care/articles/arthritis/juvenile-arthritis.html">University of Washington School of Medicine</a></p><p> <a href="https://www.healthlinkbc.ca/health-topics/hw104391">British Columbia Health Guide</a></p><p> <a href="http://www.niams.nih.gov/Health_Info/Juv_Arthritis/default.asp#10">Federal Citizen Information Center (US)</a></p><p> <a href="http://www.kidsgetarthritistoo.org/">Kids Get Arthritis Too</a></p><p> <a href="http://www.arthritisresearchuk.org/arthritis-information/young-people.aspx">Arthritis Research UK</a></p><p> <a href="https://www.arthritisnsw.org.au/2018/11/13/children-arthritis/">Arthritis and Osteoporosis New South Wales: Kids and Arthritis</a></p><p> <a href="http://www.printo.it/pediatric-rheumatology/information/UK/1.htm">Pediatric Rheumatology International Trials Organisation (PRINTO)</a></p><p> <a href="https://painhealth.csse.uwa.edu.au/pain-conditions/">painHealth – Pain Conditions</a></p><p> <a href="http://www.arthritis.org/">Arthritis Foundation</a></p><h2>Helpful tips for assessing the quality of information on the internet</h2><p>When you are looking for information, the internet may be one of the first places you turn to. The internet is the top source of information for teenagers and many adults. There are many websites about JIA, however, the quality of information on these sites varies greatly. It is important that you and your teenager talk to your teenager’s doctor to help you understand the information you find on these sites. Here are some tips to help you determine if the site is of good quality. Remember SCREEN!</p><table class="akh-table"><tbody><tr><td>S = Source</td><td>Is the sponsor of the site credible? Check out their credentials. One way to do this, though it’s not 100% accurate, is by looking at the domain. Is the site: government (.gov), educational (.edu), or nonprofit organizations (.org)? Is the site current? What is the last date it was updated?</td></tr><tr><td>C = Conflict of interest or bias</td><td>Is the site selling or promoting a product or service?</td></tr><tr><td>R = editorial Review process</td><td>Is there an editorial process or seal of approval?</td></tr><tr><td>E = Evidence-based</td><td>Are the claims based on scientific research and is there documentation?</td></tr><tr><td>E = Extreme claims</td><td>Does the site claim “miracles,” “amazing results,” or ”earthshaking breakthroughs?” Any claim that a treatment works for dozens of different problems, or has a 95% or 99% improvement rate, is likely to be misleading and driven by profit.</td></tr><tr><td>N = Not related</td><td>Is the information unrelated to or different from what you were told by your health-care provider?</td></tr></tbody></table> ​ JIA resourcesFalse