Living with a chronic condition: Helping your child manage their healthLLiving with a chronic condition: Helping your child manage their healthLiving with a chronic condition: Helping your child understand and manage their healthEnglishPsychiatryChild (0-12 years);Teen (13-18 years)NANAConditions and diseasesCaregivers Adult (19+)NA2018-11-26T05:00:00ZSara Ahola Kohut, PhD, C.Psych9.1000000000000063.0000000000000540.000000000000Flat ContentHealth A-Z<p>​Learn how you can support your child to understand their condition and manage it independently over time.<br></p><p>​As a parent, you can support your child by making sure you that you clearly understand their <a href="/Article?contentid=3400&language=English">chronic condition</a> and what adaptations, accommodations and treatments they may need.<br></p><h2>Key points</h2><ul><li>​You can help ease your child's fears or questions about their condition by explaining it to them in language they understand.</li><li>Work with your child to come up with a health summary that they can memorize and give others when they need to speak up for their needs.</li><li>Encourage your child to be as involved in hospital appointments as they can be for their developmental stage.</li><li>Keep communication open with your child to identify their goals and maintain positive coping strategies.</li></ul><h2>Further information</h2><p>For more information on parenting a child or teen with a chronic condition, please see the following pages:</p><p> <a href="https://akhpub.aboutkidshealth.ca/Article?contentid=3400&language=English">Living with a chronic condition: Overview</a></p><p> <a href="https://akhpub.aboutkidshealth.ca/Article?contentid=3402&language=English">Living with a chronic condition: Maintaining your child's everyday routines</a></p><p> <a href="https://akhpub.aboutkidshealth.ca/Article?contentid=3403&language=English">Living with a chronic condition: Supporting yourself as a caregiver</a></p>
Vivre avec une maladie chronique : aider votre enfant à gérer sa santéVVivre avec une maladie chronique : aider votre enfant à gérer sa santéLiving with a chronic condition: Helping your child manage their healthFrenchPsychiatryTeen (13-18 years);Child (0-12 years)NANAConditions and diseasesAdult (19+) CaregiversNA2018-11-26T05:00:00ZSara Ahola Kohut, PhD, CPsych9.1000000000000063.0000000000000680.000000000000Flat ContentHealth A-Z<p>Apprenez de quelle façon vous pouvez soutenir votre enfant dans la compréhension de sa maladie et de la manière de la gérer de manière autonome avec le temps.</p><p>Comme parent, vous pouvez soutenir votre enfant en vous assurant de clairement comprendre sa <a href="/Article?contentid=3400&language=English">maladie chronique</a> ainsi que les adaptations, les accommodements et les traitements dont il pourrait avoir besoin.</p><h2>À retenir</h2><ul><li>Vous pouvez apaiser les peurs de votre enfant ou répondre à ses questions sur sa maladie en utilisant des mots qu’il peut comprendre.</li><li>Travaillez avec lui à l’élaboration d’un sommaire de son état de santé qu’il peut mémoriser et fournir aux autres lorsqu’il doit faire valoir ses besoins.</li><li>Encouragez-le à s’impliquer dans ses rendez-vous à l’hôpital dans la mesure où son stade de développement le lui permet.</li><li>Maintenez une bonne communication avec lui afin de connaître ses buts et de conserver des stratégies d’adaptation positives.</li></ul>

 

 

 

 

Living with a chronic condition: Helping your child manage their health3401.00000000000Living with a chronic condition: Helping your child manage their healthLiving with a chronic condition: Helping your child understand and manage their healthLEnglishPsychiatryChild (0-12 years);Teen (13-18 years)NANAConditions and diseasesCaregivers Adult (19+)NA2018-11-26T05:00:00ZSara Ahola Kohut, PhD, C.Psych9.1000000000000063.0000000000000540.000000000000Flat ContentHealth A-Z<p>​Learn how you can support your child to understand their condition and manage it independently over time.<br></p><p>​As a parent, you can support your child by making sure you that you clearly understand their <a href="/Article?contentid=3400&language=English">chronic condition</a> and what adaptations, accommodations and treatments they may need.<br></p><h2>Key points</h2><ul><li>​You can help ease your child's fears or questions about their condition by explaining it to them in language they understand.</li><li>Work with your child to come up with a health summary that they can memorize and give others when they need to speak up for their needs.</li><li>Encourage your child to be as involved in hospital appointments as they can be for their developmental stage.</li><li>Keep communication open with your child to identify their goals and maintain positive coping strategies.</li></ul><h2>Share information with your child</h2><p>Once you understand your child’s condition clearly, explain it to your child in language suitable for their age and level of understanding. Review and update this information with your child as they get older and can better understand their chronic condition. Being honest and accurate, with age-appropriate level of detail, helps prevent your child from misunderstanding their condition or imagining the worst possible outcome.</p><h2>Help your child tell others about their condition</h2><p>As a parent of a child with a chronic condition, one of your roles is to help your child start <a href="/Article?contentid=3402&language=English">managing their condition</a> on their own. It is important to work with your child to help them develop the skills they need to care for themselves and ask for help when they need it.</p><p>As a first step, you can help your child come up with one to three sentences to describe their chronic condition, including what it means and what they need. This is called a health summary. One your child is comfortable with the summary, they can memorize it for when they need to advocate (speak up) for themselves with teachers and other adults.</p><p>Over time, your child’s condition might affect their attendance at school or their time with friends. It is helpful to come up with an answer when other children or peers get curious about your child’s absence or particular needs. How much your child wants to share is up to them. They can keep their health information private if they want to.</p><h2>Support your child with hospital appointments</h2><p>Your child’s level of involvement in their own medical appointments will partly depend on their age at diagnosis. But, even if they are young, encourage your child to be as involved as they can for their stage of development. For instance, give them a chance to ask and answer questions about their condition if they can. This will help teach them the skills they need to advocate for themselves later on.</p><p>Speak to your child’s healthcare team if you have concerns about:</p><ul><li>any emotional or behavioural symptoms, such as irritability or withdrawal, alongside a physical condition</li><li>any physical symptoms, such as recurring headaches or stomach aches, that appear alongside a mental health condition.</li></ul><h2>Communicate with your child</h2><p>Keep open communication with your child to help them develop and maintain positive coping strategies, identify their goals and understand their health.</p><p>What is most important to your child might be quite different from what is most important to you or your child’s healthcare team. Always consider what matters to your child.</p><h2>Further information</h2><p>For more information on parenting a child or teen with a chronic condition, please see the following pages:</p><p> <a href="https://akhpub.aboutkidshealth.ca/Article?contentid=3400&language=English">Living with a chronic condition: Overview</a></p><p> <a href="https://akhpub.aboutkidshealth.ca/Article?contentid=3402&language=English">Living with a chronic condition: Maintaining your child's everyday routines</a></p><p> <a href="https://akhpub.aboutkidshealth.ca/Article?contentid=3403&language=English">Living with a chronic condition: Supporting yourself as a caregiver</a></p>Living with a chronic condition: Helping your child manage their healthFalse