Heart conditions resources

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Books and websites with information about heart conditions in children.


Heart and Stroke Foundation


Canadian Adult Congenital Heart Network


Congenital Heart Information Network


American Heart Association: Children’s Health


Congenital Heart Surgeons' Society Data Center



If your child has a congenital heart defect: guide for parents

American Heart Association. Council on Cardiovascular Disease in the Young Dallas, Tex.: American Heart Association, 2002, www.heart.org.

It's my heart

The Children's Heart Foundation
Lincolnshire, Ill.: The Children's Heart Foundation, 2004 Available online from www.childrensheartfoundation.org.

The parent’s guide to children’s congenital heart defects: what they are, how to treat them, how to cope with them

Gerri Freid Kramer and Shari Maurer New York: Three Rivers Press, c2001.

The heart of a child: what families need to know about heart disorders in children

Catherine A. Neil, Edward B. Clark, and Carleen Clark Baltimore: Johns Hopkins University Press, 2001.

The heart of a mother

Anna Marie Jaworski Panama City Beach, Fla.: Baby Hearts Press, 1999

Cardiac kids: a book for families who have a child with heart disease

Vicci Elder Dayton, Ohio: Tender Hearts, 1994

Palliative care resources



Last updated: January 15th 2010