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Adalimumab

Your child needs to take the medicine called adalimumab. This information sheet explains what adalimumab does, how to give it, and what side effects or problems your child may have when they take this medicine.

3,4-Diaminopyridine (3,4-DAP)

Your child needs to take the medicine called 3, 4-diaminopyridine. This information sheet explains what 3, 4 diaminopyridine does and how to give it to your child. It also explains what side effects, or problems, your child may have when they take this medicine.

131I-Metaiodobenzylguanidine (131I-MIBG) therapy: Acting as a family caregiver in the hospital

Learn about your roles and responsibilities as a family caregiver, what you should bring and the radiation safety guidelines for when your child is receiving 131I-Metaiodobenzylguanidine (131I-MIBG) therapy.

Nutrition: How a balanced diet and healthy eating habits can help your child's mental health

Mark National Nutrition Month by learning about the nutrients and routines that can help with your child's mental wellbeing.

Medications for epilepsy

Read about various anti-epileptic drug therapies available for your child.

Cancer-related pain: Parenting strategies to support the 3Ps

Find out how you can use effective parenting strategies to support the 3Ps of pain management for your child with cancer-related pain.

Ewing sarcoma

Ewing sarcoma is a type of cancer that can start in bone and sometimes soft tissue. It is most commonly found in children, teens and young adults. Learn about the signs and symptoms and how it is diagnosed and treated.

Fever and neutropenia during cancer treatment

An overview on fever and a side effect of chemotherapy, called neutropenia. Learn how this side effect will be managed.

Genes and acute lymphoblastic leukemia (ALL) in children

Learn how gene changes can cause acute lymphoblastic leukemia (ALL).

Helping your child cope with leukemia

Learn what you can do to help your child cope with leukemia treatment, procedures, and side effects.

Acute myeloid leukemia (AML): In the hospital

Learn how to help your child get used to staying in the hospital.

Acute myeloid leukemia: bone marrow transplant

Learn which children with acute myeloid leukemia are recommended for a bone marrow transplant (BMT).

Side effects and drug interactions from anti-epileptic drugs

It is possible for children to experience side effects when on anti-epileptic drugs. These can include physical symptoms, like dizziness, and changes in mood.

Sudden unexpected death in epilepsy (SUDEP)

Sudden unexpected death in epilepsy (SUDEP) is rare in people with epilepsy. However, it is important to be aware of the risk factors and how to prevent it in your child.

Hydrocephalus

Hydrocephalus is a build-up of fluid inside the brain. Learn more about the signs and symptoms and how hydrocephalus is diagnosed and treated.

Single photon emission computed tomography (SPECT) scan before epilepsy surgery

Learn how a SPECT scan helps identify where seizures start in the brain.

Speech and language therapy for mutism after brain tumour surgery

Find in-depth information on the speech and language problems that can occur as a result of brain tumour treatment, and the ways that speech and language therapy can help.

Muscular dystrophy

An overview of the causes, symptoms and therapy for muscular dystrophy, a group of inherited diseases that are characterized by weak muscles that get weaker with age.

Helping a child cope with a brain tumour

Find advice to help you with the extremely difficult task of helping your child cope and adjust to a brain tumour diagnosis.

Types of epilepsy

Read about the types of epilepsy and the suggested treatments.

Myoclonus

Learn about myoclonus, a movement disorder that can affect children.

Osteoporosis after brain tumour treatment

Find out how osteoporosis can develop in your child as a result of brain tumour treatment, and how this can be prevented.

Poor appetite and weight loss during brain tumour treatment

Read about why poor appetite and weight loss may occur during brain tumour treatment and what you can do to help your child.

Types of ketogenic diet therapies for epilepsy

Learn about the four different ketogenic diet therapies for childhood epilepsy, which may be tried when medication has failed to control seizures and surgery is not an option.

Ventriculostomy and shunts for brain tumours

An in-depth description of the option of shunts for children suffering from brain tumours.