Physical activity and exercise are important parts of what you can do to manage cystic fibrosis (CF). Learn about activities you can do to improve lung function.
G6PD deficiency can cause red blood cells to breakdown, leading to a lower-than-normal number of healthy red blood cells. Learn about the problems G6PD deficiency can cause and what medicines and foods to avoid in G6PD deficiency.
Learn how the complications of Neurofibromatosis Type 1 (NF1) are treated.
Learn about the genetic causes of 22q11 deletion syndrome, risk factors and confirming diagnosis.
Neurofibromatosis Type 1 (NF1) occurs because of a mutation to the NF1 gene. About half of cases are spontaneous mutations, while the other half are inherited from a parent to a child.
A child with neurofibromatosis type 1 must have consistent medical care. Parents can use this checklist to ensure their child receives all the care they need.
22q11 deletion syndrome (22q11DS) is a genetic condition. Learn what causes it, how it's diagnosed and treated.
A microarray is a genetic test that can detect small missing or extra pieces of chromosomes. It can help identify the underlying cause of your child’s medical condition.
Hereditary spherocytosis is a genetic condition. In most cases it is inherited from a parent. Learn how HS is inherited and what happens in a de novo mutation.
A list of websites with in-depth information on neurofibromatosis type 1 (NF1) in children.
Neuroinflammatory disorders are conditions in which inflammation affects the central nervous system (the brain, spinal cord, and/or optic nerves).
Parents can learn about chronic graft-versus-host disease, a possible late effect that occurs after a child's blood and marrow transplant.
Learn how child life specialists can help during your child's blood and marrow transplant/cellular therapy.
Parents can learn about bone marrow and the immune system, as they prepare for their child's blood and marrow transplant (BMT)/cellular therapy (CT).
Learn about your child's care at home, after a blood and marrow transplant.
Learn about blood and marrow transplants, for a child with an immune deficiency.
Deciding about a blood and marrow transplant (BMT) is a difficult decision to make. Parents can learn some tips that may help.
Learn tips on how you can cope, after your child's blood and marrow transplant (BMT).
Learn how to help your child transition back to school, after a blood and marrow transplant.
This program is for teens aged 12 to 18 and their caregivers. It is designed to help teens learn how to better manage and live with sickle cell pain.
Learn about the medicines your child may take during a blood and marrow transplant.
Learn about the members of your child's blood and marrow transplant (BMT) medical and surgical teams.
Learn how you can help your child deal with nausea and vomiting, after a blood and marrow transplant (BMT).
Find suggestions to help your teen manage their sickle cell pain using positive coping behaviours.
Learn about the different sections and topics in the Sickle Cell Disease Learning Hub and what to expect from each one.
