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Neurofibromatosis type 1 (NF1): Treating health complications

Learn how the complications of Neurofibromatosis Type 1 (NF1) are treated.

Genetics of neurofibromatosis type 1 (NF1)

Neurofibromatosis Type 1 (NF1) occurs because of a mutation to the NF1 gene. About half of cases are spontaneous mutations, while the other half are inherited from a parent to a child.

Medical care for your child with neurofibromatosis type 1 (NF1)

Health A-Z

A child with neurofibromatosis type 1 must have consistent medical care. Parents can use this checklist to ensure their child receives all the care they need.

Genetic testing: Microarray

Health A-Z

A microarray is a genetic test that can detect small missing or extra pieces of chromosomes. It can help identify the underlying cause of your child’s medical condition.

Neurofibromatosis type 1 (NF1): Resources

Health A-Z

A list of websites with in-depth information on neurofibromatosis type 1 (NF1) in children.

Bone marrow and the immune system

Health A-Z

Parents can learn about bone marrow and the immune system, as they prepare for their child's blood and marrow transplant (BMT)/cellular therapy (CT).

Deciding about a blood and marrow transplant

Health A-Z

Deciding about a blood and marrow transplant (BMT) is a difficult decision to make. Parents can learn some tips that may help.

Parenting your child with a blood and marrow transplant

Health A-Z

Learn tips on how you can cope, after your child's blood and marrow transplant (BMT).

Returning to school after a blood and marrow transplant

Health A-Z

Learn how to help your child transition back to school, after a blood and marrow transplant.

How the iCanCope with Sickle Cell Pain program works

Health A-Z

This program is for teens aged 12 to 18 and their caregivers. It is designed to help teens learn how to better manage and live with sickle cell pain.

Medicines and side effects of a blood and marrow transplant

Health A-Z

Learn about the medicines your child may take during a blood and marrow transplant.

Medical and surgical teams for blood and marrow transplants

Health A-Z

Learn about the members of your child's blood and marrow transplant (BMT) medical and surgical teams.

Sensory development and suggestions for babies: The first 18 months

Health A-Z

Read about the sensory systems, sensory development in the first 18 months of a baby’s life and how your baby may be influenced by sensation. Suggestions such as gentle rocking, skin to skin contact, swinging and movement input are provided.

Charcot-Marie-Tooth (CMT) disease

Charcot-Marie-Tooth (CMT) is a genetic disease that affects the nerves that connect the spinal cord to the muscles and sensory receptors in the body, leading to muscle wasting, loss of sensation and challenges with balance and coordination.

Chiari malformation

Health A-Z

A Chiari malformation is when the lower part of the brain sits too low in your child's neck. Read about symptoms, causes, diagnosis and surgical treatment.

Chronic inflammatory demyelinating polyneuropathy (CIDP)

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare but treatable condition that damages nerves throughout the body, leading to gradual weakness and/or loss of sensation.

Computerized tomography (CT scan) for brain tumours

Health A-Z

An in-depth description of what is involved in a CT scan as part of the medical diagnosis of a brain tumor. Answers from Canadian Paediatric Hospitals.

Life in the Neonatal Intensive Care Unit (NICU)

Health A-Z

Learn about the challenges that parents/caregivers and families may experience when a baby is admitted to the NICU.

Expressing breast milk for your hospitalized baby

Health A-Z

The recommendations in this article are for parents who are expressing and storing breast milk for their hospitalized babies. Breast milk acts as a medicine in babies who are sick or premature, and has the right nutritional balance for your baby.

Going home from the NICU

Health A-Z

Read about issues that parents and caregivers must address in order to prepare for a baby's discharge from the NICU and arrival at home.

Back in the classroom after brain tumour treatment

Health A-Z

Detailed information on the steps required to re-introduce your child back into the classroom after brain tumour treatment.

Caring for yourself when you have a child with a brain tumour

Health A-Z

Find out how caring for a child with a serious illness can impact the relationship between parents and other family members, and how to support yourself when caring for others.

Caring for your child at home after brain tumour surgery

Health A-Z

In-depth information concerning steps after your child's brain surgery, including going home and medication.

Brain tumours: Helping siblings cope

Health A-Z

Information on the extremely difficult task of helping siblings adjust to their sibling suffering from a brain tumour.

Brain tumours and self-image

Health A-Z

Find out how your child's self-esteem may be affected by changes in appearance resulting from brain tumour treatment.