Parents can find helpful resources on blood and marrow transplants.
Parents can learn about bone marrow and the immune system, as they prepare for their child's blood and marrow transplant (BMT)/cellular therapy (CT).
Side effects after receiving a blood product are rare, but you should know what to look out for and who to contact if your child has any of these effects.
Learn why blood counts are important after your child's blood and marrow transplant.
Deciding about a blood and marrow transplant (BMT) is a difficult decision to make. Parents can learn some tips that may help.
Cleidocranial dysplasia is a genetic disorder that affects the development of bones and teeth. Learn what to expect with a diagnosis of CCD.
Neurofibromatosis Type 1 (NF1) occurs because of a mutation to the NF1 gene. About half of cases are spontaneous mutations, while the other half are inherited from a parent to a child.
A microarray is a genetic test that can detect small missing or extra pieces of chromosomes. It can help identify the underlying cause of your child’s medical condition.
Children growing up with phenylketonuria (PKU) need to incorporate health care into their normal routines. Read about encouraging proper development.
Learn about total body irradiation which is given to a child before the blood and marrow transplant.
Learn about the members of your child's blood and marrow transplant (BMT) health-care team.
Learn how unrelated donors are found, before your child's blood and marrow transplant.
Learn about the medical tests your child takes before a blood and marrow transplant.
Learn about how we feel pain, what acute and chronic pain are and the most common causes of pain in people with sickle cell disease.
Your child's health-care team may offer stem cell transplants to treat your child's sickle cell disease. Learn about the treatment, including its benefits and risks.
Learn how to use a capsule shredder with a dissolve-and-dose device to prepare capsule medications.
Step 3 of the Bright IDEAS system is to evaluate the options you listed in the previous step. Learn how to evaluate and rank your options to help you choose the best solution for your situation.
If you have completed the five steps of the Bright IDEAS system and are not satisfied with the result, you might need to go back and try Steps 1 to 5 again. Read through the case study for an example of what this can look like.
Diet and exercise directly affect your child’s sickle cell disease and how they feel. Read about how a healthy diet, enough water and regular exercise can help manage sickle cell disease.
There are many ways to classify or categorize pain. Learn what these are and the factors that affect how much pain your child might feel.
This program is for teens aged 12 to 18 and their caregivers. It is designed to help teens learn how to better manage and live with sickle cell pain.
Learn about the medicines your child may take during a blood and marrow transplant.
Learn about the members of your child's blood and marrow transplant (BMT) medical and surgical teams.
Learn the types of exercises your child can do while in the hospital, after the blood and marrow transplant (BMT).
A detailed list of epilepsy organizations, research and books. A wide range of topics is covered, including guides for families and the ketogenic diet.
