Learn how an ostomy impacts your baby's day-to-day activities and about considerations for protecting the stoma and ostomy pouch.
Cleidocranial dysplasia is a genetic disorder that affects the development of bones and teeth. Learn what to expect with a diagnosis of CCD.
Learn tips to help navigate the transitions you and your child will experience during their hospital stay for intestinal failure and when planning to return home from the hospital.
Information for parents about infantile osteopetrosis, a rare genetic condition that may cause fractures, short stature (height), recurrent infections, hearing loss and vision problems.
Genome-wide sequencing refers to two genetic tests, whole exome sequencing and whole genome sequencing, that allow health-care providers to look broadly at your child’s DNA.
Neurofibromatosis Type 1 (NF1) occurs because of a mutation to the NF1 gene. About half of cases are spontaneous mutations, while the other half are inherited from a parent to a child.
A child with neurofibromatosis type 1 must have consistent medical care. Parents can use this checklist to ensure their child receives all the care they need.
A microarray is a genetic test that can detect small missing or extra pieces of chromosomes. It can help identify the underlying cause of your child’s medical condition.
Discover information to help you decide if a feeding tube is the right choice for your child and your family.
A low-profile feeding tube requires a feeding extension set to administer feeds and medications through the tube. Learn how to connect and remove the extension from your child’s feeding tube.
Learn about biliary atresia, a liver disease in babies, and the new screening program that is used to help identify babies with biliary atresia earlier.
Some feeding tubes have a balloon that sits inside the stomach to keep the tube securely in place. Learn how to change a balloon G tube and how to confirm it is in the correct place.
Learn how to check the volume of water in the balloon of a feeding tube as well as adjust the fit of the balloon tube.
Find out which feeding supplies you will need to buy for your child, where you can buy them and what kind of funding is available for buying feeding tube supplies.
Learn how an ostomy impacts your teen's day-to-day activities and about the considerations for protecting their stoma and ostomy pouch.
Your child’s ostomy pouch will need to be emptied and changed regularly to prevent leaks and protect the skin around their stoma. Find instructions for how to care for, empty and change your child’s ostomy pouch.
A guide on how to insert your child's nasogastric tube.
Following liver or spleen injury, your child must be very careful to not re-injure themselves. Read about activities to avoid after liver or spleen injury and when to re-visit your child’s health-care provider.
An ostomy is an opening to collect urine or stool outside the body. Learn about different types of ostomies and what they look like.
Learn how to treat common problems with your child's nasogastric (NG) tube feeding.
Discover why you or your child may have been referred for a genetics appointment and what to expect when you see a geneticist and/or a genetic counsellor.
Learn the answers to frequently asked questions about pharmacogenetics.
Online grocery shopping can be convenient and offer a broader selection of gluten-free options than shopping in person. Use these tips to help you and your family navigate online grocery shopping for a gluten-free diet.
Parents can find helpful resources on blood and marrow transplants.
An overview of immunization for children who have not been fully immunized according to the standard schedule.
