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Sickle cell disease: Useful research terms and resources

You and your child may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Sickle cell disease: Useful research terms and resources

You may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.

Cancer research

Find out how cancer research works, what clinical trials are and what role you play in research.

Cancer research and your teenager

Learn about ongoing cancer research and your teenager's role in research and clinical trials.

About blood and marrow transplant research

Learn about research and clinical trials related to your child's blood and marrow transplant.

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving your consent to participate.

Treating leukemia

This section describes the treatment options for both acute lymphoblastic leukemia (ALL) and acute myeloid leukemia (AML).

Cancer programs and resources

Find helpful resources and programs to support you, your child and your family during your child's cancer treatment.

Sickle cell disease research

Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving consent for your child to participate.

The future of juvenile idiopathic arthritis (JIA)

Consent, capacity and medical decision-making for children

Learn about the roles of children, parents, caregivers and health-care providers in the shared medical decision-making process. As children mature, they develop the capacity to participate in more decisions about their own health.

Cancer resources

Discover multimedia resources that can offer you information and support throughout cancer treatment and beyond.

Craniopharyngiomas

Learn about craniopharyngiomas, including how they are diagnosed, treatments and long-term outcomes.

Common anti-epileptic drugs

Read about common anti-epileptic drugs. Each AED has a generic name and one or more brand names. The generic name is the chemical name for the drug.

Diffuse intrinsic pontine gliomas (DIPG)

Diffuse intrinsic pontine gliomas (DIPG) are a type of malignant brain tumour. Learn about the symptoms, diagnosis, treatment and outlook for DIPG.

High grade gliomas

High-grade gliomas are a type of brain tumour that can develop in the central nervous system. Learn about the symptoms, causes, diagnosis and treatment.

Treatment of brain tumours

In-depth information on treatment options for different types of brain tumours and brain cancer in children. 

Heart conditions and complementary and alternative therapies

Learn about complementary and alternative therapies and what to consider before you try them.

The future of cancer research

Find out what type of studies are being done around the world to improve treatments and therapies for cancer, including research on cancer in teens.

JIA resources

JIA resources

Primary ciliary dyskinesia (PCD)

Primary ciliary dyskinesia (PCD) is a rare inherited disease that can cause recurring lung, ear and sinus infections. Find out how the condition is caused and treated and the long-term outlook for children with PCD.

Medulloblastomas

Medulloblastoma is the most common form of brain cancer among children. Learn more about medulloblastoma symptoms, causes, diagnosis and treatment.

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